Decisions

Today I have a decision to make.

It’s not earth-shattering – it’s this: should I take my camper van to the country park, have a walk through the trees and a picnic? Should I go to B&Q, buy some compost and plants, come home and do some gardening? Should I do both, drive the camper van to B&Q en route to the country park and hope to find a parking place not too far from home when I get back, so it’s not too much of an effort to carry the compost etc home? Should I take the car (camper van too tricky to park) and go to the garden centre that’s en route to the country park (if I can remember where it is, I’ve only been a couple of times, and that was years ago), and if I do, does my parking season ticket for the country park cover the car as well?

Yesterday I bought rolls and individually wrapped flap jacks in preparation for this picnic that I was planning. But – isn’t the country park getting a bit boring? I don’t want to drive the other way, to the New Forest, because that is a full day out, and does mean driving along the M27, which can be stressful. And putting the van back into the garage is always stressful. It’s only a couple of weeks since I moved the van, so it shouldn’t have seized up yet – though I did leave the battery connected up in the expectation that I’d be taking it out again in the near future. I won’t be taking it out next week, though, because I’m going up to Bedford – on the train, because hopefully my daughter will be bringing me back to stay a few days and help with sorting out the study.

I was going to go to B&Q because I have a coupon, and Wednesday is Diamond Card day, but of course you can’t combine the offers, and anyway if you read the small print the coupon only applies if you spend £30 on full price items, so it’s not great if you want to combine lots of small things, when some of them are likely to be on multi-buys anyway, so I’d spend all my time trying to work out what to spend it on.

I like the idea of going to the garden centre, but from what I remember the parking is pretty awful, so as I said, I wouldn’t want to take the van.

I’m just trying to give examples here of what my mind is like all the time. I think I’ll give myself a treat, but it takes so long to think through all the options, implications, ramifications and potential consequences that I start to dread it, even when the object is something I know I would enjoy – unless, of course, I don’t enjoy it at all and end up wondering what on earth I’m doing there, wherever it is. Which is quite likely.

Two Days in One (Again)

Wednesday, 05 May 2021

I started writing, but after about 100 words looked up and realised nothing was happening, the last couple of sentences I’d typed weren’t there. I thought I must have accidentally overwritten it, as sometimes happens when I’m not paying attention, then I found that my mouse wasn’t working, tried the touchpad on my keyboard and that wasn’t working, nothing was working, I had no cursor. I waited for a while, then tried alt-del-ctrl and that didn’t do anything either, everything was frozen, so I switched off and started it up again. When I finally got back into Word, what I’d written wasn’t autosaved, so I had to start all over again, even though I didn’t really want to write this morning anyway.

When I got home on Tuesday I called my cat a few times, but she didn’t respond. This isn’t like her, when I’ve been away she’s usually really pleased to see me, but I didn’t worry, thinking she would come out when she was ready. I spent about an hour in the kitchen, very excited to have wifi in there at last – my son installed a booster for me when he was here on Saturday, and I now have wifi in the kitchen and bedrooms, which has been a huge bugbear for me in the four years I’ve been living here. I thought she’d appear, but she didn’t, so I went round everywhere calling her name and looking in her usual hiding places. Got my dinner – and hers – then afterwards went into the front room for my evening telly-watching. Still no cat. About eight o’clock I went all round upstairs again, and in the study (I’d been in there before) I found a little face peeping out nervously from the bottom of a book case hidden in the corner behind piles of junk and stuff.

I need to do something about this room. It is so awful. I just leave it and leave it and let it get worse.

Thursday, 06 May 2021

That’s what I got to yesterday and then gave up. Maybe today I’ll just fill up what’s left. This week I don’t seem able to come up with a full 500 words on any day. The words are there, they always are, but the inner critic keeps batting them away as being too boring or too depressing or whatever.

I got a text from my daughter, asking if I want to go and stay with them after the 17th but before she goes back to work. I told her about losing and finding the cat, and about the mess in the study. She and her sister-in-law want to go away without the kids and husbands for a few days, maybe to the cabin and I have a key now, so I could get the train and she could meet me at the station. Or she might come here and help me sort out the study, then take me back with her. I sent her photos of the mess.

Health Matters

Today I have to go to the hospital for the sixth and last of my six-monthly ‘infusions’, ie mini-chemo sessions. I can’t believe it’s six months since the last time, which followed a year after the previous one, because the one I should have had this time last year was cancelled due to Covid restrictions. But this time – this time – should definitely be the last – or at least, the last one related to the breast cancer which I had in 2016/17 (who can ever predict about the future?). It’s also the last of the series of medical appointments (for various conditions) which I’ve had over the last few weeks – the last that are on the calendar, anyway, given that I haven’t yet heard back about the results of the heart monitor, or had a call from the GP about my second Covid vaccination, though it’s about ten weeks since the first one. I’m expecting the surgery to call about that, as they did with the first one, given that it’s supposed to be done within twelve weeks, but other people I’ve spoken to (though not with my GP) have either booked both appointments online, or were given the second appointment when they had their first.

I had a phone consultation with the doctor on Thursday, about my cholesterol, and the blood test I had for that, and she said that it’s still a lot better compared with what it was when they first flagged it up in late 2019, and to carry on with the current pills at the current dosage, but I should try to get more cardio-type exercise, which needs to be more strenuous than just more walking. A least she didn’t tell me I had to give up cheese, though I have been trying to cut down. She didn’t know anything about the heart monitor, in fact she wasn’t the same doctor who sent me for it, but when I made the appointment I was told it would be a long wait for an appointment with the other one. In fact I only had this consultation because when I rang the surgery to book a blood test in advance of today’s infusion (to save an extra trip to the hospital), the receptionist told me there was a note on my file to say that I needed to book a consultation with the doctor. In the event she (the doctor) was clearly just looking at my records and giving out some fairly general advice, but I don’t say that as a criticism. I have met her several times when I used to live in the flat, and always got on well with her, it’s just that she’s not the one I’ve been seeing about this cholesterol/heart stuff.

It is all quite confusing, but I guess if the blood tests had shown anything serious, they would have been more proactive in getting in touch. In fact they seem to have got things pretty well organised in the circumstances.

Morning Walk Continued, and NaPoWriMo Stress

Two observations about yesterday’s blogging attempts; firstly, the post on here was written in a notebook while sitting in the park, without the benefit of automatic word-counting until I got home and typed it up and discovered I’d written 700 words, so I saved the last 200 for today. The other issue was that I hadn’t got a clue what to write for NaPo, nothing came to me till dinner time, when I thought of something quickly and shoved it out.

Here is the last 40% of what was in my notebook from yesterday:

Eek, it’s not on the PC, because yesterday I sat downstairs and typed it on my laptop. There will be a brief delay while I run down and email it to myself…

…or maybe I’ll carry on with what I was going to say about napo first 9dammit, still got that problem with the keyboard and still haven’t ordered a new one).

When I started the NaPoWriMo poem(s) this year (consciously using the left shift key now), they kept coming every day, but I was aware that this was a risky strategy

Over the last few days, although only half way through the month, I felt that I had reached so far into the dark, that I was obliged to start coming out. By opening Pandora’s Box, and acknowledging the Hope that hides at the bottom, I started turning it around – although that wasn’t at all how I was feeling. Is it a good idea to have a crisis bang in the middle of a narrative? And after all, hope isn’t always to be trusted.

…Then I remembered that the gates to the garden behind the Natural History Museum were open when I passed the other day, and as that is quieter than the Rose Garden I decided to go there – it’s on my usual route. I found another sunny bench near the tree where I used to go to outdoor yoga classes last summer, and sat with my coffee and notebook, listening to the birds and the sound of tennis racquets and writing this (which I’m now transcribing at home).

I know it’s not unusual for people of my age to grieve for the past: the career, the family times, the children now grown up, and so on. But I think I grieve more for the future, or futures, in which I was going to raise a family; study for a PhD; live in a big house in the country; end my marriage and live my own life; go travelling alone across Europe; write and publish a book; move to the seaside. Now when I look to the future I see that my son-in-law is planning to build a ‘granny annexe’, so that when I’m no longer capable of looking after myself, I can return to Bedford and live with them. Which is reassuring, in lots of ways, but what else is there? What about the years – hopefully many – between now and then?

Linda Rushby 15 April 2021

grim

I didn’t write yesterday. It was one of those utterly grim mornings when I couldn’t think of anything which wasn’t… utterly grim, so I couldn’t bring myself to say anything at all.

I did my napowrimo thing, but thought; what can I say/ it’s not even half way through the month, and if I’ve reached the darkest point already, what am I going to do for the next two and a half weeks? (Seventeen days counting today). To add to the frustration, the shift key on the right side of my keyboard has stopped working, which means it’s a pain to do the capitalisation for NaPoWriMo 9and if I don’t keep on top of it lots of other things go down the toilet, like question marks, brackets and i0.

But the keyboard thing isn’t really relevant to my general feelings of despair, and I just need to get round to ordering a new one. I came up with a Napo-etc poem yesterday, but couldn’t quite bring myself to use the word ‘hope’. That’s the problem, isn’t it? When you can’t see any hope you can’t wish it into existence from nowhere. It doesn’t matter how irrational that is, that sense of everything falling apart. What makes any one morning feel any worse than any other? All mornings are shit – if you choose to write in the morning, it’s not surprising if everything comes back to moaning.

But if I’m honest, I know exactly why yesterday was so hard – because it was the first session of tai chi in the park – as opposed to on Zoom – and I’d been dreading going out and interacting with other people – even a nice, friendly group of people whom I used to see every Tuesday morning. Did walking twenty minutes to the park make it somehow worse than three minutes to the community centre where the classes used to be? No, not particularly. Anyway, I could have driven, but that would have meant finding a parking place near the park, and another one near home when I got back, and I need the exercise. The fact that it was in a new place probably did enter into it somehow, even though it’s a place I’ve driven past many times, it’s still a new walk and a new location. But mainly it’s the experience I HAD AT THE END OF THE FIRST LOCKDOWN (not shouting, just demonstrating that because I’m trying to use the left hand shift key I keep getting caps lock instead without noticing. Also, on the sentence I started with ‘Anyway’, I accidentally hit the ctrl key, and when I glanced up everything I’d typed so far had disappeared, because it had done ‘select all’, and I carried on typing – I didn’t realise that was what had happened, but I managed to keep hitting ‘undo’ till it all came back).

I have to go out again today, for a Covid test, but at least that only requires the minimum of human interaction.

Pinball

My new glasses had been missing for over twenty-four hours. Five minutes before my Skype therapy session, I picked up a glasses case from the bookcase in the hall, which I knew I’d picked up in a previous search, but at that time I shook it and thought it was empty, this time I opened it and there they were.

I went into the front room to set up my laptop for the Skype session, for which I wore my reading glasses, but I knew I needed the varifocals for the session proper. When Skype was open, I took off my readers to put the other ones on. They weren’t on the sofa next to me, they weren’t on the bookcase. I went back into the hall, just to make sure I had actually picked them up and brought them into the front room. I had walked maybe four metres up the hall and into the front room with them. I went back into the front room and checked the sofa again. Sitting on the sofa, I glanced round and saw a black glasses case on the rosewood table, just in my eyeline. Was that it? I walked over and picked it up and opened it – yes, there they were. I must have put them down on the table (amongst all the other junk, including another glasses case) as I walked past it en route to the sofa and the laptop. From start to finish, this took less than five minutes, but I had no recollection of where I’d put it down because things like that don’t register in my head.

Now, you’re probably thinking: ‘Oh, that happens to me all the time!’ or ‘We all have days like that!’ but that is not the point. My entire life revolves around things like this happening, so frequently that I couldn’t possibly count how many times a day (and I’d forget to anyway). Why am I focussing on it this morning? Because it’s symbolic.

I am thinking about fractals and granularity. Incidents like this happen at a microscopic level, but if I zoom in or out on my life, I can see them happening in different ways, at different granularities, over different time periods. They bounce around my head and it’s impossible to impose any structure over them, or to focus on more than one at a time, or to string them together into any kind of rational order. I have been card-making all week and that is all about tiny things and tiny actions, but what order do I need to do them in, and where are the things I need, and now I’ve found this, where did I put that which I had in my hand only minutes ago?

My therapist says: ‘that’s because you’re multi-tasking’ but with dyspraxia ‘multi-tasking’ is impossible, because you can only focus on one thing at a time and you lose track of everything else, and so you constantly bounce around like a pinball.

Spring Thoughts

Sun shining again this morning. There’s something sneakily deceptive about the tail end of winter and start of spring because, although it might be sunny, it’s not actually warm enough to throw off coats and jumpers, until that day when you find yourself walking down the street in your winter coat and notice that other people are out with bare arms and legs (scrub the latter because these days there are some English blokes who will go out in shorts at any time of year – very different from how it was in my childhood). Oh look, the grammar checker wants me to change ‘bare’ to ‘bear’ in that previous sentence – must be thinking about the US Constitution (or is it the Bill of Rights?) Either that, or it’s about men walking around with fat arms covered in dense fur, like bears – that’s an image that’s now lodged into my brain and won’t go away in a hurry. The explanation given is: ‘possible word choice error’ – nope, sorry mister grammar checker, I said exactly what I intended to say, and I’m right and you’re wrong, as usual.

The coming of spring should be a source of joy, so why am I so grumpy? Partly because of the shambles in the garden, I guess – not that I’m ungrateful for my snazzy new shed, but it’s brought home to me the amount of work that needs to be done everywhere else. Gardening is one of those things that I have in times past been very enthusiastic about – or enthusiastic about planning, thinking and fantasising about, at least. Like most things which require sustained effort and attention, I rapidly lose interest when the results don’t live up to my hopes – or just generally lose interest when other things take over my time and attention.

A recent discussion on the dyspraxia Facebook page centred on the word ‘dyspraxia’ itself, which has been concocted from Latin or Greek (maybe both) to mean ‘bad at doing’, just as ‘dsylexia’ translates as ‘bad at reading’ or dyscalculia ‘bad at arithmetic’. (BTW, I did pick on the fact that I mistyped ‘dyslexia’, but left it because it amused me.) To me, ‘bad at doing’ sums up everything perfectly, but some contributors to the discussion found it excessively negative, and were arguing for the use of the term preferred in the US, which is ‘Developmental Co-ordination Disorder’, or DCD. I don’t like this at all, and not just because it’s American. ‘Developmental’ makes it sound as though it’s something that occurs in the developing child, and hence the implication is that you can ‘grow out of it’, which I can confirm is a long way from the truth. Then ‘Co-ordination’ puts the stress on the physical effects on gross motor skills, reminiscent of the old term: ‘clumsy child syndrome’, whereas the main impacts for me are those on brain functions: working memory, planning, organisation, absorbing and retaining information, time management, lack of concentration etc.

Not to mention, shit at gardening.  

Struggling

I dreamt last night, and remembered it for once. I think I’d moved house – at any rate, I was living in a different house from this, a more modern one, though to me ‘modern’ means any time from the 1970s onwards, I’m not used to anything more ‘modern’ than that. I don’t think I’d been living there very long, and I kept finding things in unexpected places – I know that’s not unusual with my memory, but among them were things I definitely didn’t recognise. The only explanation was that there was someone else in the house, or coming into the house, moving things around and leaving things that weren’t mine – I’m sorry this is very sketchy but my memory for dreams is never very clear. I was trying to explain to somebody – in person or on the phone, I can’t remember – about this sense of another person coming into my house, when I found a young blonde woman with a little girl was there with me, and she seemed to think it was her house, – she wasn’t the person I’d bought it from, but she clearly had a key. I tried to reason with her but she got angry. Then I thought I should call the police and get them to come while she was still there, but I couldn’t find my phone and while I was looking for it I woke up.

I lay in bed for quite a while and got up late. I felt overwhelmed with anger and despair, as I sometimes do in the mornings. I have got a lot of medical stuff to deal with over the next few weeks, I need to make appointments for blood and Covid tests, which I tried to ring up about yesterday (the GP and hospital respectively) but couldn’t get through. And I need to book my car in for its MOT, and started to think: the MOT is due by the 7th, and I have to go to the hospital on the 17th, and need a Covid test within 72 hours, so what if I book the test for the 15th but then find the car fails the MOT, then I would have to take the van, but the drive through testing at the hospital is under cover, so would I be able to take the van? And will the van even start? I need to know this well in advance so I can tell the hospital I’ll need an alternative non-drive through test. All the what-ifs, what-ifs, what-ifs and all the phone calls I need to make to sort it all out hang around me like a lead collar, and this is why I get so angry with myself. I thought I would get better with this stuff as I got older, but I never do.

I know that everyone’s struggling at the moment, but I can’t help feeling as though everyone is now just getting a glimpse of what it feels like to be me.

Tackling the Chaos: Memories Lost and Overwhelmed

Clicking through photos again to track down another one which came up on my desktop recently, I thought it was from Sête in Provence, but it was a little further east along the coast, at Le Grau du Roi in the Camargue, taken on a very grey and damp Spring Equinox in 2012 (of course). Which reminds me of my late friend Douglas Jeal, who, after hearing my tales, went to the south of France at around the same time the following year, then grumbled at me because the weather was horrible. What did he expect? Well, he had lived in Barcelona for a while, which has its own microclimate, so I suppose he can’t be blamed for thinking it might be similar  a few hundred miles along the Mediterranean coast.

What else does that remind me of? A few days ago the image on my desktop was of a map of that corner of the Med, a mural on the wall of Bordeaux station, where I was stranded for a couple of hours or so during a train strike when I was en route from Brittany to northern Spain. Something piqued my interest when I saw it again, but I couldn’t remember what it was, so I opened the file in Photoshop to check, and still can’t see why. It’s quite a poor quality photo – from an old, pre-Smart Nokia phone – so zooming in hasn’t helped. Maybe it will come to me.

I’ve mentioned before about the Magic Refilling Data pot, and how my efforts at clearing space on my google Drive by downloading photos from Google photos to my hard drive and then deleting them from Google photos were being thwarted because every morning my phone was being backed up to another file on Google Drive. Over several days (because it takes a long time to select and delete that many photos and my PC is four years old and quite creaky – and also it was refilling again every morning with the ones I hadn’t backed up and removed from my phone) I managed to get all the photos up to the end of 2020 from my phone, onto my hard drive, and removed from the backup file on Google drive. The day came when I logged on to my computer, opened my Gmail, and was informed that I had used 11 Gb of my 15Gb allocation. That lasted a couple of hours before the messages started to appear telling me that my Google Drive was full again.

I listed all files in descending file-size, and found that the photos I’d already deleted were still appearing on the list. By clicking on each file, I was given a side panel with details, including the folder where the file was located. Clicking on the name of the folder led me up the tree to the folder where it was, and so on until I reached a folder called ‘Desktop’, and above that, another one called ‘Computers’… tbc

Oyster Shell

Yesterday morning I took the cat to the vet’s for a ‘Senior Wellness check’. This used to be called a ‘Senior Health check’ and I couldn’t help imagining them burning aromatherapy candles, playing soothing music and maybe giving her a back massage. I had to drop her off at the surgery because of current lockdown conditions, and wait till they called me back to come and collect her. Because of the blood tests she wasn’t allowed anything to eat after ten the night before, which usually means pleading looks until it’s time to go, but in fact she just stayed out of the way, and when it was time to go allowed me to pick her up and put her in the basket with no struggles or complaints. In fact, she was unnaturally subdued, and still is this morning. When I collected her, the nurse asked if she could take her home to teach her own cat a lesson in manners, which is a far cry from this time last year when I dropped her off and went to the Co-op, then got a phone call from the vet asking for permission to sedate her because she was kicking up such a fuss.

She’s getting old. We all get old and resigned to the way things are. I guess that’s the way I’m feeling at the moment – except when I’m in a panic over something or other. Lockdown lethargy.

On my desk there’s an oyster shell. I don’t know where it came from – well, the beach, obviously, and before that in the sea, wrapped around an oyster. But how did it come to be on my desk? My house is full of oyster shells, and ‘interesting’ pebbles, picked up from beach walks. But this one in particular… I don’t know – it must have fallen out of a box of ‘stuff’ or something. I don’t know what it is about oyster shells – I used to think they were ugly, not like the pretty little scallops, rosy pink and smaller than my thumbnail, or the slipper limpets with their oddly shaped cavity. They are rough and monochrome and no two are ever alike, but if you turn them over and the light catches in just the right way, sometimes the gleam of mother-of-pearl will take you by surprise. I used that image in my poem ‘Beachcomber’. The document on my computer has it as:

The shimmer of an oyster shell,
Like tears for a lost pearl.

Linda Rushby July 2015

That’s funny – I could have sworn I used ‘gleam’. Maybe I changed it. Poems are not immutable. But when I check the book, I find that I published it as:

‘Oyster shells shimmer
Like tears for a lost pearl.

Beachcombing‘, Linda Rushby April 2016

Well well well. That scans better, and it has the alliteration too, but I still like ‘gleam’, it has a lovely sound.

Which reminds me, someone bought a copy of ‘Beachcombing’ from Amazon last year, the first time it’s sold other than sales I’ve made in person.