Category: acceptance

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Do It Again

I move something off the desk, balance it on top of another box of stuff, there’s a crash and the whole lot scatters on the floor. I moan, don’t I? I go on about how hopeless I am, but I never bloody do anything about it. Mea maxima culpa. What else can I say?

I’ve now made a start on both the projects I was talking about the other day: the website and the jumper. I had to give up the idea of using WordPress for the website because the client doesn’t like the free domain (appended with a nine digit number), but equally doesn’t want to have to pay for hosting for just a couple of pages. The websites I used to manage I hung off my own hosting, but I don’t want to commit to doing that long term, and anyway, it’s so long ago that I’m not sure how I did it, and it has undoubtedly all changed since then, and I don’t want to have to go there. But I bought the domain name she wanted for five years in advance, and then discovered that I still couldn’t attach it to a free WordPress site. So now I’m trying to do what she wants using Blogger, which I haven’t used for over ten years, and never liked very much, and I’m still not sure I’ll be able to use this domain I’ve paid for.

And this was all supposed to be something very quick and simple, just a couple of pages and a contact form, that I could knock up quickly for her on the cheap, a Blue Peter website made with cornflake packets and loo roll middles and stuck together with sticky-backed plastic, I can do it for you, no probs, couple of hundred quid. Should have told her to do it on Facebook.

So I’m learning how to use Blogger on the hoof (or ‘winging’ it, depending on which anatomical metaphor seems more appropriate, horse or bird related). Which reminds me why I started using WordPress in the first place.

But I have to have something to do – otherwise, I could be walking on the beach, or crocheting and listening to the radio, or untangling yarn, or weeding the garden, or mopping the kitchen floor, or tidying the study. ( Or even writing a book? Get real!)

On the dyspraxia forum, people talk about ‘super powers’ (I think that must be a life-coaching thing), and one that often comes up is persistence, sticking at things, not giving up – apparently that’s something dyspraxics are good at, like original thinking, creativity and sense of humour. But I’m always giving up, like Mark Twain giving up smoking – it’s easy, I’ve done it thousands of times. Everything is a disaster, I give up in despair, get up the next morning and try again, with a kind of brute doggedness, again and again and again. ‘Try again, fail again, fail better’ (Samuel Beckett). Beat yourself up about it, and do it again.

‘Do It Again’, Steely Dan

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The Lottery

Yesterday afternoon was my weekly Skype therapy session, and, not knowing what to talk about, I told the therapist about the stress and worry over the test appointments earlier this week.

‘It seems you’re worrying about the processes and administration more than what it’s all about, which is the opposite of what most people would do’ she said.

By ‘what it’s all about’, of course, she meant cancer – but honestly, what’s that to worry about? If that sounds flippant, we’re not talking here about any particular risk. The infusion I’m going for on Saturday (tests permitting, and I’m still waiting for the result) isn’t even directly related to cancer, but to reducing the risk of side effects from the medication I’m taking to reduce the risk of the cancer coming back/happening again. And whether at some point I’ll get cancer again, or osteoporosis, or both or neither is not something I think about on a daily basis – although I do, of course, keep taking the prescribed tablets and a calcium supplement. That’s part of my routine. And going for the infusion, although uncomfortable and annoying, is also routine – this is the fifth time I’ve done it, and that followed after six sessions of chemo, which were much nastier and lasted longer but were basically the same process, in the same ward at the same hospital. So I know what I’m doing, I just have to turn up at the usual place for 10:30 on Saturday, with my Kindle to read while I’m waiting (there’s always lots of waiting) and after that it’s out of my hands.

This harks back to something I’ve said before: that getting through cancer (in my experience) is not about being ‘brave’ or emotionally strong or staying positive, it’s about doing what you’re told, turning up for the treatments, taking the meds, trusting in the expertise of the medical staff, accepting any help that’s offered. In the end, it’s a lottery, but you can buy as many tickets as you can lay your hands on to improve your chances of getting through. Even so, you could be knocked down by a car any day on your way to the local shop, so why torture yourself by worrying about death when there are so many other ways to do it?

The therapist’s response was to say: ‘There are two types of people in the world…’ and I thought she was going to say something profound, but instead it was just: ‘…those who blame themselves for everything that goes wrong and those who never blame themselves, and we know which you are,’ which we’ve talked about so many times, and didn’t seem terribly relevant or helpful in this context. I was thinking more of Chekov: ‘Any idiot can face a crisis; it’s this day-to-day living that wears you out’, which was sent to me on a card years ago by a friend who never saw her fiftieth birthday because she died of breast cancer six months before.

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Leaf Upon the Water

Poem today. Not sure why. Sometimes it happens like that. Feels like this is the first one in a while

The photo was taken in the water lily house at Kew Gardens in 2015. The flowers and small leaves in front are lotuses, the large leaves behind are from giant water lilies. I was tempted to use a photo of a water lily from my old garden pond, but thought some smart Alec might point out that it wasn’t actually a lotus (that’s the sort of thing I’d do, anyway).

Also ‘The lotus flower grows from shit’ is only one of many interpretations of the mantra ‘Om mane padme hum‘ but it was the one explained to me by my first meditation teacher, and it makes for a great metaphor.

Leaf Upon the Water

The lotus flower grows from shit,
the silt of a thousand fishes, living
and dead, their shimmering scales,
dulled and darkened,
sinking through the cloudy waters
to the home of the scuttling things,
sliding into and becoming
the black, unspeakable ooze
that clings and clods
and welcomes into its bitter embrace
the scattered seed
that cracks and bleeds
in its agony of birth,
sending its silvery roots into the darkness
to trap the rotting death-food and to grow
new life that rises,
green and fecund
to break the surface,
unfurl its leaves
and open its lovely face towards the sun.

I am the leaf upon the water,
held in the magic of the meniscus,
I will not struggle
I will trust the power of the water,
I will lie back and let it hold me
until my season is done.

Om mane padme hum.
The lotus flower grows from shit.

Linda Rushby 30 September 2020

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Log Cabin

Very late this morning – although I’ve been awake for two and a half hours already. I decided to start doing my half hour yoga etc in the mornings again, and had a shower and washed my hair, and just generally time passed as it so often does.

Routines, as I’m sure I’ve said before, are both constraining and liberating. I half thought last week that I wouldn’t restart these two morning routines – exercise and blogging – but that’s because I was in a pretty shitty mood after returning from Cyprus. It’s so easy to slip down into chaos – especially for someone like me. Spontaneity can be exhilarating, but it can also be terrifying. Sometimes the chaos reaches a point where the only way I can deal with it is by ignoring it, and so it grows exponentially until it reaches a crisis and I fall apart emotionally. I was getting close to that point last week. But yesterday I wrote my blog; tidied the kitchen; loaded, ran and emptied the dishwasher; hoovered the stairs and landing – never really know what brings me back from the brink. I might say: ‘a decent night’s sleep’ but that wasn’t the case. Taking the van out on Friday? Doing that one, big(ish) stressful thing and then putting it to one side? Putting everything else into perspective? Maybe.

When I was learning to drive, the instructor told me that the greatest pleasure in life comes from doing something you really don’t want to do, and then afterwards, knowing that you’ve done it. Over forty years later, I think that’s still one of the wisest pieces of advice I’ve ever heard.

I’ve started a new crochet project – while still finishing off the previous one (both cardigans). I started following a pattern for what’s called a ‘log cabin’ design, starting with a small square, then every few rows rotating the work and picking up stitches along the edge of the existing work so that you have a rectangle that keeps growing – like a spiral growing out from the centre, but with straight edges. I’m using a ‘cake’ type yarn with large blocks of colour, and it looks pretty good. But I don’t like the shape of the pattern in the book – which makes a sleeveless waistcoat, which I’m not that keen on. So I’m trying to think of a way of adapting it to make a cardi with sleeves. This is the sort of thing I like to do – trying out something new and seeing how it works out.

Every so often I think I’ll give up on crochet, because it’s too repetitive and I feel like I’ve exhausted the possibilities. Then I get an idea like this and get interested again. Admittedly, I have cupboards full of projects that I’ve never finished, and garments that I’ve never worn. But I keep going back to it. And today I’m looking forward to sitting in the sunshine and trying again.

Maybe there’s a metaphor for life in there somewhere.

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Splurging

Do I want to write today? Some of the stress I was under earlier in the week has been alleviated, I slept a bit better last night – 71% according to the sleep cycle app, but then it was 79% two nights ago, so doesn’t necessarily correlate with a good mood in the morning. I don’t know what those percentages are based on – is it percentage of a ‘normal’ night’s sleep – eight hours, maybe? When I first installed the app, it spent the first few days saying it was calibrating, so maybe it relates to how much sleep I had in those first few nights? Or is it a kind of index which also takes into account factors like frequency of waking in the night or proportion of deep to light sleep? Whatever, it’s never 100%, and very rarely over 90, so 79% is pretty good.

In checking my sleep, I got distracted onto Twitter and came across this quote:

“You can’t say, I won’t write today because that excuse will extend into several days, then several months, then… you are not a writer anymore, just someone who dreams about being a writer.”

Dorothy C. Fontana.

Hmmm – that’ll be me, then. No surprises there. I retweeted it anyway.

Is there any other activity/artform where you create so much ‘stuff’ just to throw it all away again? Another tweet from the same person’s feed:

‘To be a writer is to throw away a great deal, not to be satisfied, to type again, and then again, and once more, and over and over….”

John Hersey.

That’s not quite what I meant – I was thinking not of the early drafts that become something in the end, but what I do: writing for its own sake that never does and never will go on to become ‘something’ – not about perfection, but just ‘splurging’.

Incidentally, after I’d written the word ‘stuff’, I tried to think of a better word for the products of ‘creative’ effort, and I thought of ‘material’ – which reminded me that my Mum – who was trained as a seamstress– used to sometimes call fabric/material ‘stuff’ – oh the wonders of language!

Where have I got to? Not very far is the answer, but then I very rarely do.

I wrote about Tara Brach a couple of days ago. One thing I struggle with in her teachings is the idea that to manage your emotions you need to identify where they manifest physically in your body and focus on that. But emotions occur in the brain, surely? I’ve had this problem with other meditation teachers – I once raised it with the leader of a meditation group and he was really dismissive: ‘oh, so you think it’s all in your head, do you?’ in a tone that implied I was being deliberately obtuse. But although there are conventional physical reactions to some emotions – mostly concerned with changing the heartbeat or breath – isn’t saying that love comes ‘from the heart’ metaphorical? To be continued (maybe).

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Blame Game

By chance this morning, looking for something to read on my Kindle, I found a book I’d forgotten I had, by Tara Brach. In fact, I was apparently 25% of the way through reading it. She’s an American meditation/self help guru who was recommended to me by someone I met at a mindfulness retreat a few years ago. I watched/listened to a few of her videos on Youtube, and downloaded this book.

I needed something to read on the loo, so I read on from the point where it ‘opened’. It was an anecdote about Christmas dinner with her family, where every individual was being annoying for one reason or another. In a huff (she didn’t put it like that), she went out for a walk on her own in the snow, reflecting on this, and realised that while she was blaming them she was really angry with herself.

I finished on the loo and went to the kitchen, where the radio was playing Thought for the Day. The speaker was also talking about deflecting our own blame onto other people, and how we should face up to it and take responsibility (maybe not in those exact words). And I thought, well, that’s what I do all the time, isn’t it? I always take the blame onto myself, and like apologising, somehow it can make people even more irritated with me, and I with myself. What am I doing wrong?

My late mother-in-law used to say: ‘Everybody makes mistakes, but I try not to make the same mistake twice’, the implication being that you can’t be blamed for the first time, but you should learn not to repeat whatever it was that you did. Because if you do repeat it, you become culpable for failing to learn the lesson the first time.

I’ve taken a lifetime of blame, but I just keep on and on making the same mistakes. I’ve tried to learn the lessons, take responsibility, be a ‘better’ person – but there are aspects of myself which will never change no matter what I try to do – and I am trying to explore and accept them, because I’m tired of fighting against myself. It’s easy to get frustrated and irritated with the chaos of my life, but as long as it’s just me on my own dealing with the consequences, it’s not so bad as when it affects someone else, or there are witnesses, and I have to deal with their reactions, and my own reactions to them.

Yet at the same time I have this compulsion to ‘come out’, to explain myself, to be understood and accepted for who I am. Judge me if you must, but please try to judge me on my own terms, not by comparing me to the person you believe or want me to be (or think I ‘should’ be).

Perhaps all our perceptions are illusory, but my self-knowledge is based on a lifetime’s study, and – I think – deserves to be heard.

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Going Through the Motions

Going Through the Motions

Get up and do what you always do,
even though your head is full
of all the times it hasn’t worked before;
of all the reasons why it doesn’t work;
of all the many ways it might go wrong;
of all the problems you can’t imagine
until they happen.

You want to run away and hide,
but you’ve tried that before,
and it never worked
so why should it now?

This is life,
this is how it works.
Stumble on,
from one day to the next
and maybe you’ll
get away with it
for one more day.

Linda Rushby 18 August 2020

There was a post on the FB dyspraxia group asking how many members write, and what we write. I started thinking about poems I’ve written down the years which relate to my dyspraxia (even when I didn’t know that’s what it was). They tend to be the ones I don’t share much, because I don’t expect people I know to understand them or like the fact that I’ve written them about myself. The two I first thought of were ‘Cahos’, from 2005 (oh, look at that typo again – I may make that the actual title of the poem from now on) and ‘The Awkward One’ (2017, I think).

I saw the post at bedtime, and started going through my Google drive from my phone looking for the two I’ve mentioned and to see how many more I could find (a very bad idea when I was supposed to be going to sleep). And then when I got up and was doing my morning routine, I came up with the one above.

I could probably fill a whole book, but I doubt it would be very popular. From one point of view, these poems are seething with self-pity, self-loathing and shame – which is why I often keep them to myself. On the other hand, they are also searingly honest, full of pain, sadness, regret, frustration and barely suppressed anger. Both of those descriptions sum up my underlying emotional landscape a lot of the time.

The anger in particular WAS COMING OUT A LOT IN MY THERAPY SESSIONS towards the end of last year (oops, must’ve hit the caps lock without noticing, but that also seems quite appropriate!) I suppose my current task is to learn how to deal with it without turning it onto myself – incredibly hard and stressful, but I am trying.

One way of doing that is to have routines and stick to them even when I really don’t feel like it. Yesterday I skipped my weekly yoga-in-the-park session because I convinced myself it would rain – but then it didn’t. And I felt bad for making that an excuse for my lack of commitment. So I’m trying to deal with that.

I heard a podcast of the TED Radio Show on BBC R4Extra yesterday, about choice and making decisions. I need to listen to it again, then maybe I’ll have something to say about it.

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In Absentia

I said yesterday that I’d started a to-do list. I actually did one of the five things I’d written on it – clear and clean the kitchen table. I also did other things related to that which I hadn’t written on the list – like putting away (or rather, dumping in the study) the toys the grandkids had out last week (not just the ones on the kitchen table, but also the ones in the front room); cleaning the sink, draining board and surrounding counters; pulling bags of yarn out of the Chinese cabinet looking for something to use for the border of the baby blanket I’m making for my daughter’s ex-sister-in-law’s second baby (and hence Flick’s cousin) who was born last week (because I need to use all the yarn I have for the blanket itself or else it will be unbalanced because I only had four balls of the original and have had to do a band of a different colour in the middle, and don’t want to go back and start again given that the baby’s already arrived).

I started wondering how much of my time in an average day is taken up with looking for things, often things I’ve only mislaid in the previous five minutes. My first instinct was that it’s probably between about one and two hours. That might sound like a bit of an exaggeration, but I’m sure it’s never less than half an hour, and that is balanced out by days when I might spend several hours on trying to find one particular thing. More than once I’ve had kind people (who presumably think I’m incapable of thinking this out for myself) suggest that I have specific places for things like my glasses, phone, keys, wallet, hand bag, coat etc etc etc so I always know where to look for them. I then watch their expressions go from helpful to sceptical as I point out that the problem doesn’t arise at the point when I’m looking for whatever it is – when my mind and concentration is focussed on finding and I do indeed go straight to those ‘specific places’, before starting to figure out exactly where it is this time – but at the point when I put it down, when my mind is NOT concentrating on what I’m doing, but probably on what I’m going to do next; or what needs doing and what I should be doing next; or what I’m going to cook for dinner and when I need to start that; or what somebody said to me earlier or last year; or what I should have said or done in response but didn’t; or what I’ll say next time; or just generally (in that lovely phrase) ‘away with the fairies’.

To use another lovely phrase, I am ‘absent-minded’, and most of the time my mind is completely absent from whatever and wherever I need it to be in that moment, and this, I suppose, is the root of all my difficulties.

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Imminent Cahos (accidental typo, but I left it because it seesm appropriate – and there I go again!)

I mentioned that I’ve joined a Facebook group for dyspraxic adults. Yesterday I got involved in a hilarious thread about having to brush your teeth before you get dressed so you don’t get toothpaste down your top. There were 34 likes, loves and laughs (so far) to the original post, and pages of comments. Honestly (I have to keep saying this) I always assumed it was just me. A couple of people said: doesn’t everyone do this? But I know for sure, because the person I’ve lived with longest (my ex) somehow managed to brush his teeth with his mouth closed – I tried it a couple of times, but couldn’t master it. I used to assume it was because I habitually breathe through my mouth, due to all the rhinitis allergies I’ve had down the years (I was always that child with the permanently runny nose).

Someone asked: ‘Does your dyspraxia affect your daily life?’ to which the answer can only be: ‘Yes, massively!’ The most obvious effect is that my main source of exercise is wandering from room to room and up and down stairs because, as my Dad would say: ’you don’t let your head save your legs!’ (as if it was that easy – presumably it was, for him). I know many people see the constant back-and-forth of trying to find things and remember what you’re supposed to be doing and why you’re there as a huge joke, but it can be exhausting and beyond frustrating – after sixty-odd years, the humour has worn mighty thin. More than one person has dropped hints about early onset dementia to which I can only say: extremely early, considering I’ve been like it forever, but at least if it does come I’ll be well-prepared.

The short term memory thing, though very significant is only part of it, of course. Time- and spatial-organisation and management is another, and planning and sequencing activities down to minute detail is related to that. I’ve often felt (before I ever heard of dyspraxia) that I have problems managing boundaries – temporal, spatial, interpersonal, probably loads of other categories my left brain hasn’t yet thought of. It’s most obvious with time, I think – when I start doing something, it takes as long as it takes – it’s why I can’t handle deadlines, or keep appointments – both of which are sources of friction with the external world and other people – and hence sources of shame and self-recrimination, leading to stress and further inability to cope.

But by comparison with many of the younger people in the group I’m so fortunate – I possess the two great blessings of financial security and self sufficiency. Many of the posts are concerned with finding and keeping work, getting help, negotiating relationships and living with other people. One young woman said in a post yesterday: ‘How can I explain … that we don’t KNOW how we adapt our lives because it’s just normal to us?’

We never lose that sense of imminent chaos. But we adapt.

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No Pressure…

Wisdom of a lifetime, accumulated from what I’ve read, been told and learned from experience:

  • I think too much;
  • I never think;
  • I feel too much;
  • I am selfish and don’t have enough consideration for other people;
  • I care too much about other people’s feelings and what they think about me;
  • My expectations of life are ‘through the roof’;
  • I don’t expect enough from life – I should dream more, decide what I want and go for it;
  • I need to get out more and meet people;
  • I am happier on my own and should keep away from other people because being with them makes me stressed and frustrated;
  • I need an occupation that will give purpose to my life and focus my energies;
  • I need to do less and stop running myself ragged all the time;
  • I need to try harder;
  • I shouldn’t have to try at all;
  • I need to write every day – doesn’t matter what about;
  • I need to be focussed in my writing and finish what I’ve started;
  • I need to tidy up after myself, because how can I focus and be comfortable when I’m surrounded by chaos?
  • I need to stop beating myself up about the chaos and learn to be happy as I am;
  • I need to organise myself, make lists, set goals and get some structure into my life;
  • I need to take each day as it comes and be spontaneous;
  • I need to sort myself out;
  • I need to be less self-centred;
  • I need to be more self-disciplined, to stop floundering about and getting nowhere;
  • I need to stop being so hard on myself.