Category: Social media

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Finding the Way (or not)

Now my proof-reading job has finished, I was planning to get on with ‘The Long Way Back’. But I’ve reached the time when I was in Prague, and even starting to read back the blog posts from that time has reminded me of how stressed I was over the teaching course, interviews, flat, etc, not to mention the accident when I fell on my face and the problems with my teeth. There’s a story there to be told, but it’s not a very cheerful one, nor is the year that followed it, and I’m back with a sense of not wanting to touch it, as I had the last time I tried, three years ago. But if I leave it like that, I guess in a way it will always haunt me, and I have to draw a line under it somehow.

Yesterday I ended by quoting from a post on a Facebook group for dyspraxics which bothered me, about how people like me should stop apologising and feeling ashamed, and sorry for ourselves. That is me in a nutshell, right there, but how do I stop? If I am to be true to my nature, that is how I have always been, and always will be. I can’t be strong and proud of myself, because this is who I am, this is my lived experience: that I try things, mess them up, break things, am constantly late, messy, chaotic, forgetful, all those things. I read other people’s posts on the group, where they talk about repeatedly failing at interviews, hopelessly looking for jobs but never being accepted for anything that matches their qualifications, getting bullied at work and at home for being slow, chaotic, etc, and so on, and so forth. Is it so surprising that we are apologetic, full of shame, sorry for ourselves? Don’t we deserve somewhere, one place at least, among our peers, where we can share these stories and feelings?

But at the same time I can see where this person is coming from. I despise myself when I feel sorry for myself – I have written about this before, the horrible vicious circle that makes it so hard to have any kind of self-love or self-belief. That’s what is so stark when I read the blog posts from Prague: how out of depth and hopeless I felt. I now know where those feelings originate from – but knowing that there’s nothing I can do to change the way I am doesn’t help.

In the ‘affirmative’ ending to my ‘Square Peg’ poem I wrote that I’ll never find a space to fit my edges unless I ‘make one for myself’. By that I am acknowledging that no one else can help me to find a way of accepting myself – I no longer fantasise about finding an ‘other half’ who will make me whole at last – but I still don’t know how to do it for myself, except, as I’ve always done, by running away and hiding .

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Walking Into the Wind

Walking the other way, the way I used to go every Monday morning, towards the leisure centre and the now defunct swimming pool.

The wind is coming from the sea and right up my street, the way it wasn’t on Friday. More wind means more waves and that’s more usual than Friday’s calm. Even in the Rock Gardens, which always used to be a haven, I can still feel it, or at least hear it. A flock of pigeons skitters in the sky, crossing each other’s paths then dispersing in a shower of squawks. A ribbon of toilet paper flutters across the path, but later it seems miraculously to have been blown into a ball, wedged against a rock marking the edge of a flower bed.

Before I left home, the weather app promised me no rain for at least 60 minutes, so why can I feel splashes on my face, too far from the beach to be spray?

I glance at my watch: 8.25, half an hour till the cafes open, so I head for the shelter on the prom. Is it raining? I still can’t tell, the clouds are grey enough, and the gulls are flying high, circling against their dark backdrop. The flagpole outside the Lifeguard Station keeps up its tattoo of rope against metal as the waves continue to roar majestically, and the sun reappears, silvering the surface. I watch someone from the cafe pushing a sack-barrow, moving a plant pot to the edge of the seating area – it must have been moved to safety overnight to stop it being blown over.

When I step outside the shelter, the wind comes back again, full force. I walk back to the Rock Gardens, to the bench where I was before, still no rain, and I notice how close it is to the fish pond, which I had my back to before, so didn’t consider as a source for the droplets.

I think I’ll wait for the cafe to open at nine, then realise that I’d still have to sit outside on the prom to eat my breakfast, so give up and walk home.

I read this on the Dyspraxia Facebook group:

I’m done with shame and feeling sorry for myself. I will no longer apologise and be a victim to it. You don’t see a wheelchair user apologise for using a chair. So why should we apologise for how our wires connect in our brain ? Which is outside of our control. We either work with it or struggle against it. Either way we owe no one an apology for how we’re wired.

At first reading I felt irritated by it, because after all, shame, apologising and self-pity have been a way of life for me. Looking at it again, I can see it’s not a personal attack on me, in fact it’s a perfectly sensible attitude, but somehow it struck a nerve, maybe because I’ve always judged myself on those criteria and come up wanting.

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Bleuuurrrgggh

Hey ho, switched on the computer and it took me four attempts to realise that the reason it wasn’t accepting my password was because the caps lock was on. When it occurred to me, I thought: ‘surely there’s usually a message to tell you that’ and then saw that there was one but I hadn’t noticed it. It hadn’t been switched off properly, so when I got on it went straight to Facebook and I started scrolling through that, ‘loving’ friends’ pictures of their cats and laughing at cartoons.

I’ve been to Sainsbury’s already this morning to find that they didn’t have any of the usual cat food (trust me, it’s not worth buying any other kind), and, more seriously that they didn’t have any Marmite. I asked a young man who was restocking the bakery shelves, and he showed me where it should be and said ‘it’s in short supply everywhere isn’t it?’ Is it? I didn’t know, and I’ve completely run out. ‘You could try one of the larger stores, or’ and he lowered his voice confidentially and pointed across the road: ‘Tesco’s!’

I will return to Tesco, but I wasn’t about to go over there with my three bags of shopping from Sainsbury’s, so I came home.

I had a bad night last night – they’re never good, but this was particularly bad, and I don’t know why. I tried listening to two programmes I’d downloaded, and they were both pretty depressing, one the fifth episode of a series, and I’m not sure if it’s the last or just the last I’ve downloaded, and the other the start of the second series of something else. They were oddly similar, both about feisty women in history, one being Eleanor of Aquitaine, and the other a fictional Icelandic woman from some period in history, which come to think of it could be about the same. The actresses sounded very similar, both with Northern English accents (in Eleanor’s case, presumably to emphasise her provincial back ground) – I suppose it could even have been the same actress, but I haven’t checked. I’m not sure I want to listen to any more of either of them, not even in the early hours – as I said, they were both very depressing, although Eleanor was the less sympathetic of the two.

Although I’ve lived with this insomnia all my life, so that it’s part of my life, I still keep wondering if there is any better way of dealing with it. I lay there doing my downwards-counting in my head, and thought: well, soon it should be warm enough to be worth getting up and sitting in another room when I can’t sleep, even though it’s never helped when I’ve tried it before. But I feel so tired when I’m lying there, I don’t have the energy to get out of bed – and that of course carries over to the morning as well, I never want to get up, but I also hate lying awake.

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Procrastination

An interesting question came up on the dyspraxia Facebook page, as someone commented that their procrastination had: ‘…gotten (sic) out of control’, especially in relation to washing up. The first person to comment said; ‘You’re punishing yourself, stop it’, and the second asked what they were doing instead; was it something else on their to-do list? (to which the answer was: watching telly). Mine of course would be: knitting, or crochet. Or maybe, as the temperature is now gradually creeping up, sitting in the garden in the sunshine (though not actually doing any gardening).

I say it’s interesting because instinct tells me that my tendency to procrastinate is somehow linked to dyspraxia, but the stern voices in my head say: ‘no, that doesn’t make sense, it’s just because you’re a lazy cow and you’re trying to make excuses by blaming dyspraxia for everything’. The tendency to dither, take too long over things, and get easily distracted is certainly related to dyspraxia, as is the generation of so much chaos in your surroundings that you learn to ignore it and accept it as a fact of life – not to mention feelings of exhaustion and lack of energy to tackle any of it.

I also believe that lockdown has been responsible for encouraging this kind of procrastination. It creates a sense of unlimited time and reduces stress by eliminating the need to leave the house and engage with the world, while also removing the enforced motivator of anticipation that outsiders might come into the house and see what a shithole it is, which is usually a major driver for me to engage with housework.

That said, I’ve been making more of an effort against the washing-up-sitting-in-the-sink phenomenon. In my dim-and-distant days as a Young Mum, I was well known for my inability to sit down and relax with a drink until after the washing up had been dealt with. These days I can’t wait to get out of the kitchen-dining room and retreat to the sofa, my latest project and a couple of episodes of ‘Law and Order’ (my latest retro-catch-up series from twenty years ago, which has intriguing plots and engaging characters without the visceral gore that’s obligatory these days). In the last few months I’ve been struggling to revive that past diligence by at least making an effort to leave pots and pans standing for no longer than one day – last week I even found myself one morning spontaneously cleaning the top of my gas hob while I was waiting for the coffee machine.

The neighbouring house on the side that shares a wall with my kitchen is rented out on short-term lets, so the tenants change quite frequently, and I don’t have much contact with them. The last few mornings I have heard the sound of a plug being inserted in a socket the other side of the wall while I’m having breakfast, and then the drone of a hoover. Every. Single. Day.

Is it me, or is that ‘normal’?

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Ducks in a Row

I am not two different people, or three or four, or however many I might have said at different times. Just want to make that clear. I am not Linda H OR Linda R; or Belinda, Melinda, Cassandra, Cat by Herself; I am both, all of them, or possibly even none, but in the end I am still me. When I switched on my PC this morning, Microsoft welcomed me as Linda H, while my laptop knows me as Linda R, but it’s just a matter of context. To family, Facebook, Twitter, close friends and acquaintances I’ve met since I moved to Southsea, I am R, but to most of officialdom (Portsmouth City Council, HMRC, DWP, DVLA, banks etc) and most people I know from Bedford days, I am still H – there is even a very small number of people I’m still in touch with who knew me from when I was ‘R’ before, forty years ago now.

I didn’t set out to write about my identity today, in fact I was intending to pull together some threads which I was thinking and writing about last week – so here goes. I was talking about card-making, and all the different items and processes involved in it that make it so unsuitable for anyone with dyspraxia and hence so stressful. Every time, I start intending to be more organised and keep a lid on the chaos, but it never works out that way.

But I was thinking about it as a microcosm of my life. There are things that need doing, and I have to think and decide about what’s the best order to do them in, and how I’m going to do them, and what I need to do them with, and by the time I’ve made a decision on any of those things, I’ve forgotten what I decided about the previous ones, and so I go round and round in circles.

I have spent a lifetime thinking that there are answers to these questions and that I should be able to get on top of them, that if I try just a bit harder I can make everything fall into place, and my life will become so much easier. Now I’m coming to accept that all the planning and to-do lists in the world are never going to change me, or change the way things are. There’s a saying going the rounds on Facebook (is ‘meme’ the correct word for that sort of thing?) which I’ve seen a couple of times: ‘Not only are my ducks not all in a row, I don’t even know where my ducks are!’ I’m not even sure whether I’ve got any ducks in the first place.

I sit in my chaos thinking about how to resolve it, and never manage to break out of those circles. Except sometimes I get an idea about one specific thing – like my google drive – and keep looking for an answer, however many times I fall down

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Everything in the Garden…

I’ve already been to the Co-op today. I managed to avoid going all last week, because I stocked up the week before when I was having visitors for the weekend. And by using up supplies of longlife and evaporated milk, and Elmlea (which I’d bought to put on trifle – for my visitors – till I went to the shops again and managed to get real fresh cream); taking dinners from the freezer backlog of all those ‘chef’s surprise’ slow-cooker meals which have been building up; and a take away curry delivery on Saturday, I held out without needing to go until today. Saturday’s dinner in the slow cooker will be belly pork with cannellini beans, celery, red pepper, carrots and maybe sweet potatoes cooked in cider, because too many of the ‘chef’s surprises’ seem to have sauces based on tinned tomatoes, and I fancied a more radical change.

I have been getting discouraged about a lot of things lately – mainly the garden. My Facebook memories keep showing all the lovely things which were in flower at this time last year. Someone said to me the other day that my garden is ‘blooming’, but he was judging it from Facebook, where I have posted pictures of every single flower I’ve seen so far – sometimes several pictures of the same one, over a number of days, as I’m still trying to post a photo every day. The actual total of flowers so far has been: one yellow and three white daffodils on the forecourt, and in the back garden one blue hyacinth and a handful of mini daffodils; two hellebores (one single and, more recently, one double flower), a few blossoms on the rosemary which were only visible if you looked very carefully and a couple of yellow celandines under the camellia (which I only just remembered). The rest is a desert of weeds, rotting planks and general junk currently in transit between the sheds. Is this disaster down to the hot, dry summer last year, or a total lack of interest and attention? I assume most likely a combination of the two.

It’s the curse of social media. However honest I try to be about my general worthlessness and self loathing, it seems that people want to keep seeing me in a more positive light. Which is very frustrating – but on the other hand, if they could see me more clearly, they wouldn’t want to be my friends anyway. And then I’d feel even worse.

I honestly don’t know how to shake off these feelings, and more and more it seems that there isn’t any escape. The effort required feels overwhelming, but so is the effort to pretend to be what I’m not: brave, positive, upbeat, hopeful, happy etc. Feelings always take control over intentions to change, to find a better way to be.

I almost didn’t write today. Perhaps it would be better if I didn’t throw all this out into the void. But I usually feel better afterwards

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Boring, Boring, Boring

Yesterday I experienced something I haven’t been aware of in a long time: boredom. I finished bringing my financial spreadsheet up to date, but didn’t feel as satisfied as I expected. The afternoon plays on Radio 4 and 4 Extra respectively were: the first episode of a three-part adaptation of ‘Tess of the Durbervilles’ (well done, but hard to avoid the sense of impending doom) and a thirty-year-old drama about a divorced sixty-something woman with breast cancer who is reunited with an old admirer, has a mastectomy and moves to Australia (either breast cancer treatment has improved a lot since the early 1990s, or the writer didn’t have much idea of what he was writing about – no chemo or radiotherapy, just straight to the knife).

Ironically, I also listened to a programme on boredom, but I didn’t take much of it in.

I’m getting bored with the jumper I’ve been knitting, the one I pulled down because it didn’t fit, and I haven’t quite caught up to where it was before. I’m not looking forward to doing the sleeves, which are going to be fiddly, but I want to get it done so I can wear it at least once before the weather gets too warm. If current trends continue, it may be even smaller by next winter (think about it).

Which reminds me, on this morning’s weather forecast they said that it will get a lot warmer, maybe as high as 17o  this week, which would be white and green within a week!

I saw a picture on a Facebook crochet group last week of a blanket with an amazing spiral pattern. There was no pattern attached, and I couldn’t work out from the photo how it was done, so I Googled it, and found a simple technique for making a four-colour spiral – not quite the same, but still interesting. I made a start with four colours of cotton yarn leftover from last year’s weather blanket (I have changed to using a different, lighter yarn this year), and it’s given me the spark of an idea.

I also saw a cartoon on Facebook yesterday titled something like: ‘The Mind/Body problem’, showing a man sitting on a sofa, with a thought bubble coming from his head saying ‘Get up!’ and one from his body saying ‘Nope!’ or words to that effect – exactly summing up my mood, but I can’t remember where it came from.

But for this morning I have some editing – which will be interesting and, being a commission for someone else, takes priority over housework, decluttering, study-tidying or any of those other multitudes of Jobs That Needs Doing.

I keep thinking of things I could do, hobbies that I could take up or restart, projects that I would enjoy getting stuck into, most of which I already have the materials and equipment for, or could easily get hold of online. Books to read, jigsaws to do, projects to complete, all at my fingertips, but can I be bothered?

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Alternative Reality

On Facebook recently, somebody shared a question on the lines of:

‘If you had the choice of going back to when you were ten but with the knowledge you have now, or $50k and fifteen years into the future, what would you do?’

My reaction was: it might be interesting to see what the world’s like by 2026, but why would I want to go back to the age of ten and live through all that shit again? What use would the accumulated wisdom of half a century be to a ten-year-old girl?

Anyway, what would I do differently? Skip the first marriage, obviously – but not the second, because of the children. And it was my first husband who pointed out to me the job advert which led me to Bedford and ultimately to Hubby 2. On the other hand, if I knew then what I know now, I could look out for that job in the early summer of 1975 and apply for it anyway. I could apply for that degree course in maths and linguistics that was in the list of degrees I looked at in 1971, instead of the one in economics and statistics in Southampton. I’ve often thought that might have been an interesting path to take – I can’t remember which university it was, but I’d be in a different place, with different people, my student life could have been completely different. And I could still have applied for that job in Bedford – assuming the rest of the world was still running on more or less the same tracks.

There was a film in the 1980s, called ‘Peggy Sue got Married’ in which a suburban American housewife (played, I think, by Kathleen Turner), disappointed with her cheating husband (ditto Nicholas Cage) and teenage children, is sent back in time to her high school days. In the climactic scene (spoiler alert), when she is trying to explain to her childhood sweetheart and would-be fiancé (the aforementioned cheating husband) why she doesn’t want to marry him, and how she knows for sure that he will be unfaithful, she pulls off the locket round her neck and shows him the pictures of their son and daughter as babies to prove the truth of her time-travelling tale.

‘But they’re us’ the puzzled lad replies. ‘Our moms must’ve given you those photos of us as babies.’

Cue big moment of realisation. She looks at the babies, and looks into his eyes, and says, breathily (in a young version of Kathleen Turner’s voice):

‘You’re right, they are us, they’re you and me!’

Or words to that effect – it must be over thirty years since I watched that film. I don’t remember how it ends – probably she awakes from a coma because it was all part of a concussion dream, or whatever, with her loving husband and children around her bed, and realises how lucky she is to have them all.

But no, I couldn’t write my children’s father out of my story.

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First Sunday in January

Every morning, I wake up feeling myself to be at the bottom of a dark and muddy pit, and I have to drag myself out of it and face the day. That’s the meaning of the routine I described yesterday, because it gives me a sequence of things to do and ensures that I don’t have to make any choices until late morning (apart from deciding what to write on here, of course).

Last night I must have had quite a vivid dream, because I distinctly remember thinking: ‘this is really good, I know I’m dreaming but I can remember all that’s happened quite clearly and it all makes sense!’ I can remember that much, but not the content of the dream I felt I was living through at the time.

I keep seeing friends’ pictures on Facebook of their morning walks, but don’t feel the urge to go myself, even though this is the easiest time of year to see the sunrise. One set of pictures of the boating lake and beach on Friday morning just brought back a memory of walking by the Thames and going up in the London Eye on New Year’s Day morning in 2010 – the first anniversary of the post I shared a couple of days ago. Circles and spirals. On my own for a year, and looking down on a new world and a new decade (I personally think that, as the calendar is a cultural construct anyway, it makes sense for a decade to be defined by its third digit). Anyway, one year into my new life, I felt that the year ahead was going to be the one when things would really start to take off for me.

People (by which I guess I mean, ‘myself, but I don’t want to admit whatever it is I’m about to say’) always seem to put too much stress on that mark on the calendar (which reminds me, I haven’t even got one, because I still haven’t got round to organising it, probably too late now, and I haven’t taken the old one down from the wall).

I’ve observed it with a minimum of fuss this year, I suppose that’s largely down to being home alone. In the past I’ve been criticised for having expectations ‘…through the roof…’, though these days I have very few expectations of myself, or of the world. All those years of trying to change the external conditions of my life, then trying to change myself into a ‘better’ (in some nebulous way: More organised? More productive? Less selfish? More altruistic?) person, and finally trying to change how I felt about myself: (More accepting? More fulfilled? Happier? More at peace?) have not freed me from the early morning dark and muddy pit that I scrabble out of every day.

In my yoga session this morning, this question popped up: ‘Do you love me?’ and back came the reply: ‘of course I love you, now, bugger off and leave me alone’.

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Part of an Explanation

In the post-waking and pre-getting up time between 4:30 and 7:00 this morning, because I hadn’t yet started reading anything new on the Kindle, or downloaded the next bit of the podcast I’m listening to (I have to do that in the wifi area, ie front room or study), I was browsing Facebook. On the dyspraxia group there was a post from a 77-year old lady whom I’ve chatted to before (let’s call her Jane, because that’s not her name), with a photo of a letter explaining to her that she isn’t entitled to a diagnosis on the NHS. I feel bad for her, because she can’t afford to get one privately, as I did, but she wants to be assessed to convince her family that she has real problems and isn’t just being difficult, in order to improve her relationships with them, who apparently don’t treat her very well.

But from my experience, quite honestly, my expensive diagnosis doesn’t hold much water with most of the people I’ve tried to explain it to – which is hardly surprising, because, hey, I’m dyspraxic, and not being able to explain things clearly and convincingly is part of who I am. Because there’s so little awareness, and because it’s in many ways more nebulous than, say, dyslexia or ADHD, and the ‘symptoms’ (poor short term memory, poor organisation, poor punctuality, problems with absorbing and processing information which manifest as not listening, not paying attention etc etc etc) appear as the kind of ticks and habits which are frustrating both for the dyspraxic individual and the people they come into contact with – the kind of habits that for most people can be overcome with a little thought and effort, but for someone like me appear insurmountable…

What was I saying before I launched into that mammoth sentence? Oh yes, convincing people that these are real problems that are hard for you to manage, and can they please cut you some slack. Even my therapist doesn’t always get how hard it is to find people who will respond positively to this. She once said: ‘But you have a severe learning disability and you can prove it because you’ve been formally assessed’ – which raises the question: how can that be true when I also have a PhD? (although nobody takes that seriously either). The brain (anybody’s brain, not just mine) is a huge mystery, and the more we learn about it the less it all seems to make sense.

I started wanting to write a comment to my Facebook friend Jane, to tell her that having a diagnosis probably wouldn’t improve her relationships with her family, and the support she gets from the Facebook group is likely to be more valuable. Mine hasn’t allowed me to go back and make more of the opportunities I missed, or help me find new ones, or taken away the sense that my life has been a bit of a shambles – it’s just part of an explanation of why I’m me.