Bother

Why do I bother? God knows. I haven’t got a clue.

I did another of the five items on the list yesterday – and a bit of another (sorting out my accounts, which is going to be a long job), and had a stab at another (renewing the insurance on my van) but got stymied by the technology, because I thought I could renew it online, but couldn’t see how, so now I don’t know if it will renew automatically or if I have to call them – which reminds me that the van itself is a can of worms, because I need to call the garage – but I don’t want to use it at present anyway.

You’ll notice there are still five items – I haven’t added any more, although I keep thinking of them, but I never remember to write them on the list. However, I did do last night’s washing up when I got up, and tidied and wiped the kitchen counters and sink (again). We’ll see how long that lasts.

I made a plan yesterday evening that if I was awake early enough this morning I would walk to the beach and watch the sunrise, but I slept in till 5.20, so there wasn’t time to get myself sorted and to the beach before the actual sunrise at 5.37.  And although I don’t really like lying in bed when I know I won’t get back to sleep, I still don’t want to get up either, even now, when it’s warm.

This is why I’ve decided that routine is so important, because if I know what I ‘should’ be doing, maybe that will push me (‘motivate’ is too strong a word) into doing things even when I really don’t feel like it (which is about 23 hours and 55 minutes of every day). Given that I’ve got quite good about doing my half hour of exercise and meditation, and writing my 500 words of drivel, over the last few months, I’m hoping that maybe I can squeeze some more useful and positive habits into my days.

I’ve given some thought in the past to how to get over the problem I was talking about yesterday, of never knowing where I’ve left things. One solution would be to constantly scan every room for anything which isn’t in its ‘specific place’ and return it so I can find it when I need it again – the price of liberty is eternal vigilance. I guess that’s what most non-cahotic (I like that typo, I think I’ll leave it) people do automatically – but the idea fills me with horror and deadens my soul. There wouldn’t be time for anything else, would there? But then if it actually worked, wouldn’t it save the time and stress of constantly searching for things? I think of my spirit animal, Mole from The Wind in the Willows, throwing down his paintbrush and running out into the springtime to cries of ‘Bother!’ and ‘Oh blow!’ and ‘Hang spring-cleaning!’

In Absentia

I said yesterday that I’d started a to-do list. I actually did one of the five things I’d written on it – clear and clean the kitchen table. I also did other things related to that which I hadn’t written on the list – like putting away (or rather, dumping in the study) the toys the grandkids had out last week (not just the ones on the kitchen table, but also the ones in the front room); cleaning the sink, draining board and surrounding counters; pulling bags of yarn out of the Chinese cabinet looking for something to use for the border of the baby blanket I’m making for my daughter’s ex-sister-in-law’s second baby (and hence Flick’s cousin) who was born last week (because I need to use all the yarn I have for the blanket itself or else it will be unbalanced because I only had four balls of the original and have had to do a band of a different colour in the middle, and don’t want to go back and start again given that the baby’s already arrived).

I started wondering how much of my time in an average day is taken up with looking for things, often things I’ve only mislaid in the previous five minutes. My first instinct was that it’s probably between about one and two hours. That might sound like a bit of an exaggeration, but I’m sure it’s never less than half an hour, and that is balanced out by days when I might spend several hours on trying to find one particular thing. More than once I’ve had kind people (who presumably think I’m incapable of thinking this out for myself) suggest that I have specific places for things like my glasses, phone, keys, wallet, hand bag, coat etc etc etc so I always know where to look for them. I then watch their expressions go from helpful to sceptical as I point out that the problem doesn’t arise at the point when I’m looking for whatever it is – when my mind and concentration is focussed on finding and I do indeed go straight to those ‘specific places’, before starting to figure out exactly where it is this time – but at the point when I put it down, when my mind is NOT concentrating on what I’m doing, but probably on what I’m going to do next; or what needs doing and what I should be doing next; or what I’m going to cook for dinner and when I need to start that; or what somebody said to me earlier or last year; or what I should have said or done in response but didn’t; or what I’ll say next time; or just generally (in that lovely phrase) ‘away with the fairies’.

To use another lovely phrase, I am ‘absent-minded’, and most of the time my mind is completely absent from whatever and wherever I need it to be in that moment, and this, I suppose, is the root of all my difficulties.

Monday Morning

Back here again. Why? Because half the time I swear I’ve given up for good and then one morning I think I might try again. Just this once. On the understanding that it’s the same old nonsense and, basically, a complete waste of my time writing and yours (whoever you are) for reading it.

But we both still have a chance. You can stop right here – or I could, in which case you wouldn’t have the chance either way, because obviously I wouldn’t bother to post this. But I probably won’t – stop, that is. Though with another potential 400 words… Who knows?

It’s nine o’clock now (I went to the Co-op before starting) and it’s Monday. Does that mean I can play music without worrying about disturbing the neighbours? There again, they might work shifts, for all I know.

Okay, now I’m playing Roxy Music’s ‘Flesh and Blood’, that being the first cassette I pulled out of the shoebox at random that I haven’t already transferred to the PC. Still haven’t done anything about replacing the stylus on my turntable.

Reached the second track, ‘Oh Yeah’, and the sound quality is pretty awful. I have the original album somewhere, so if I get my finger out and do something about that stylus, I can play that. But I still feel a bit wary about playing these old albums – they’ve been kept for all these years and moved from place to place, and maybe it’s all been a waste of time because they’re ruined anyway.

Next track, ‘Same Old Scene’, isn’t much better.

How do I manage to do anything? Repetition, routine, and constant self-bullying. I bullied myself into going to the Co-op this morning. I bullied myself into putting the shopping away when I got back, and starting a ‘to-do’ list. The weight of the things I don’t do is always in my head, because I’m always thinking about them, except the times when I let myself off and sit in the sun or listen to the radio and/or crochet. Or else I’m thinking about other things, worse things, that I’ve read or heard or people have said or done to me that make me angry or sad or hopeless.

I think constantly about these things, but never do anything – worse, the thinking itself is completely aimless and futile, it’s not even as if by thinking I ever produce a coherent plan of action which I then proceed to complete. Except – well, I did start making that to-do list. If I completed some of those things, I suppose I’d be happier. But a more reliable way of becoming happier is by quietening the thinking – and the way to do that is by doing things that make me happy directly – like sitting in the sun, listening to the radio, and/or crocheting – all of which I may do later after I’ve had breakfast.

The second side of the album sounds better than the first one did.

Think it’s time for breakfast.

Imminent Cahos (accidental typo, but I left it because it seesm appropriate – and there I go again!)

I mentioned that I’ve joined a Facebook group for dyspraxic adults. Yesterday I got involved in a hilarious thread about having to brush your teeth before you get dressed so you don’t get toothpaste down your top. There were 34 likes, loves and laughs (so far) to the original post, and pages of comments. Honestly (I have to keep saying this) I always assumed it was just me. A couple of people said: doesn’t everyone do this? But I know for sure, because the person I’ve lived with longest (my ex) somehow managed to brush his teeth with his mouth closed – I tried it a couple of times, but couldn’t master it. I used to assume it was because I habitually breathe through my mouth, due to all the rhinitis allergies I’ve had down the years (I was always that child with the permanently runny nose).

Someone asked: ‘Does your dyspraxia affect your daily life?’ to which the answer can only be: ‘Yes, massively!’ The most obvious effect is that my main source of exercise is wandering from room to room and up and down stairs because, as my Dad would say: ’you don’t let your head save your legs!’ (as if it was that easy – presumably it was, for him). I know many people see the constant back-and-forth of trying to find things and remember what you’re supposed to be doing and why you’re there as a huge joke, but it can be exhausting and beyond frustrating – after sixty-odd years, the humour has worn mighty thin. More than one person has dropped hints about early onset dementia to which I can only say: extremely early, considering I’ve been like it forever, but at least if it does come I’ll be well-prepared.

The short term memory thing, though very significant is only part of it, of course. Time- and spatial-organisation and management is another, and planning and sequencing activities down to minute detail is related to that. I’ve often felt (before I ever heard of dyspraxia) that I have problems managing boundaries – temporal, spatial, interpersonal, probably loads of other categories my left brain hasn’t yet thought of. It’s most obvious with time, I think – when I start doing something, it takes as long as it takes – it’s why I can’t handle deadlines, or keep appointments – both of which are sources of friction with the external world and other people – and hence sources of shame and self-recrimination, leading to stress and further inability to cope.

But by comparison with many of the younger people in the group I’m so fortunate – I possess the two great blessings of financial security and self sufficiency. Many of the posts are concerned with finding and keeping work, getting help, negotiating relationships and living with other people. One young woman said in a post yesterday: ‘How can I explain … that we don’t KNOW how we adapt our lives because it’s just normal to us?’

We never lose that sense of imminent chaos. But we adapt.

More Musings

Another morning, another empty white screen.

Still reading that book. It’s moved on from left brain thinking to ways of developing the right brain: yoga, tai chi, meditation etc. The irony is that my PhD thesis was all about managing a world where causes are reductive and impacts are holistic. Trying to find left brain categories for right brain phenomena when language itself is suspect because it immediately binds thought into its own limitations. I used to get so excited about all that stuff, until I realised that this is in itself the problem, that the two can never be reconciled, and that’s why the world is in such a mess, and probably why my head is in such a mess too. I didn’t use the language of left-and-right-brains twenty five years ago, but the ideas are directly comparable.

How can I express myself more clearly? Reading back that last paragraph, I thought: it’s about control. We try to understand causes and control them, but the problems with this are legion: how do we identify the fundamental causes? How do we find ways of controlling them? How do we implement the controls and sanctions? How long does it take before we come up against the unintended consequences of those controls and sanctions? And what has happened in the meantime to the overall impacts we were trying to control in the first place? I could go on, but I’ve probably confused you more than enough already (if there is a ‘you’ still reading this).

And how, if at all, does this relate to my dyspraxia? The author of that book would probably say that my right brain is currently working out something that my left brain is preventing me from recognising.

Yesterday was Skype-therapy day, I read out to the therapist the list of ‘wisdom’ bullet points that I posted earlier in the week, and I thought I was being quite tongue-in-cheek about it, but part way down the list I started to get tearful. Because all those contradictions and over-simplifications are what makes up who I am, and can’t be wished away by well-intended platitudes, or by trying to make me laugh at myself when all I want to do is cry. Maybe, in the context of what I was saying, they’re a set of left-brain ‘solutions’ to the holistic right-brain question of who I am and how I get by in this world without shattering into a million fragments.

I’m not saying dyspraxia explains all of that. Of course, it’s a left-brain category and hence by its nature draws arbitrary lines in the sand – this side and that side, inside and outside. But the more I look into it, the more I unravel the strands of how I became this self-contradictory person, the more I can see how well it fits.

Yesterday I joined a Facebook group for dyspraxic adults. I have a sense of ‘coming out’ and being – not exactly proud (I don’t do ‘pride’) but maybe ‘honest’.   

No Pressure…

Wisdom of a lifetime, accumulated from what I’ve read, been told and learned from experience:

  • I think too much;
  • I never think;
  • I feel too much;
  • I am selfish and don’t have enough consideration for other people;
  • I care too much about other people’s feelings and what they think about me;
  • My expectations of life are ‘through the roof’;
  • I don’t expect enough from life – I should dream more, decide what I want and go for it;
  • I need to get out more and meet people;
  • I am happier on my own and should keep away from other people because being with them makes me stressed and frustrated;
  • I need an occupation that will give purpose to my life and focus my energies;
  • I need to do less and stop running myself ragged all the time;
  • I need to try harder;
  • I shouldn’t have to try at all;
  • I need to write every day – doesn’t matter what about;
  • I need to be focussed in my writing and finish what I’ve started;
  • I need to tidy up after myself, because how can I focus and be comfortable when I’m surrounded by chaos?
  • I need to stop beating myself up about the chaos and learn to be happy as I am;
  • I need to organise myself, make lists, set goals and get some structure into my life;
  • I need to take each day as it comes and be spontaneous;
  • I need to sort myself out;
  • I need to be less self-centred;
  • I need to be more self-disciplined, to stop floundering about and getting nowhere;
  • I need to stop being so hard on myself.

Coping (Barely)

Yesterday evening I felt overwhelmed by the futility of everything, and started weeping uncontrollably – which is unusual, because that’s how I normally feel in the morning. By the evening, it’s usually much better.

On Thursday, the therapist asked whether the dyspraxia assessment I had two years ago had come up with any advice or strategies which might make life easier. I couldn’t remember. I said I would look at the report, but when I started looking for it I couldn’t find it – because although I’d saved it in a folder in my documents, I’d done it under the name of the consultancy that did it, and I couldn’t remember what that was.

I went into my accounts for 2018, and found the name of the consultancy with the payment. I then searched on that, but Microsoft Search showed me links on the web, not in my files. So I tried again by searching for it in my emails (miraculously, although it could have been under any of four email addresses I use, it was in the first one I tried). I found the pdf attachment of the report, but it was password protected, I had to read another email to get the password, then I kept getting it wrong, but finally got into it. (It was after all this that I found that there was actually a folder under the consultancy name in my documents folder, plus a word document with the password in, but now I know it’s all there I will change the folder title to include ‘dyspraxia’ to make it easier to find next time).

The answer to the therapist’s question about advice was: ‘If Linda requires support whilst working as a self-employed writer and publisher she could consider workplace skills training with a specialist dyspraxia/dyslexia tutor’ but nothing about coping with daily life. Also, if I ever take any more exams, I should be entitled to extra time for completing them.

Under ‘Implications for work and study’, the consultant says: ‘Because of Linda’s difficulty processing information, she is likely to have problems: assimilating information when reading (thereby needing additional time to do so); formulating her thoughts, fluently and quickly…; with handwritten tasks (eg copying information); with memory (eg remembering instructions, sequencing, retrieving information and planning ahead); multi-tasking (eg dealing with multiple pieces of information/documentation)… with personal organisation; with co-ordination; and working within time constraints… she will require more time to learn and undertake complex tasks.’ (But no mention of cat food in the coffee pot, or where I put my glasses thirty seconds ago.)

Well, tell me something I don’t know already – but at least it’s reassuring to know there’s a reason why I’m so chaotic, even if there’s nothing I can do about it. Except, of course, to be a ‘good person’ – to become self-disciplined despite all my instincts and inclinations, organise my life and myself and keep on top of everything all the time – but somehow without being self-critical and beating myself up.

Thinking, Writing, Writing, Thinking

What I write here is whatever pops into my head, and that’s all I can write.

How many times have I said that? Yeah, I know, a lot, I keep droning on about it. What am I doing wrong? I used to think that as long as I kept writing every day, something miraculous would happen , and I’d find a way of being able to write ‘properly’, to think up stories, to go back to my novel and finish it. But it doesn’t work, so why am I still doing this?

‘Oh, you have to write through all that shit’ people tell me. That’s easy for them – maybe they only have a small amount of shit to get through. For me, it seems there is no getting to the other side.

‘Write another story like that one’ someone said to me yesterday, referring to ‘Eagle Flight’, which has just gone into ‘Flights and Fancies’, the upcoming Southsea Storytellers anthology. And yes, it’s a good story, I agree, one that I wrote about twelve years ago. But how did I write it? Where did it come from?

The answer to that is that it was inspired by an object (a soapstone eagle) which was used for an exercise in a creative writing class, and worked up into a story for an end of term assessment. If I dig around I might be able to find the tutor’s comments, but obviously in those days they were all handwritten on the hard copy.

Just before the lockdown started, I went to another creative writing course, with similar exercises to stimulate writing. I went to the four sessions and brought the material home and haven’t looked at it since. A friend invited me to join a writing group on Facebook which has regular prompts, and I’ve done nothing for that either, bar sharing a couple of poems.

I don’t engage with any of this any more, and I haven’t for years. Why do I still hang on to this tiny, frayed thread of an idea that I might ever be ‘A Writer’? Why do I even want to? I am very late writing this morning, and I almost didn’t bother at all. It’s stressful. I’m stressed enough, worrying about parcel deliveries and my sick cat, how can I get medicine down her to help her appetite when she won’t eat anyway? Worrying about so many things, most of them not so important in the scheme of things but they still need to be dealt with, they require action, and action requires thought and decisions and plans and comparisons of the best way to do them and then energy to get on and do whatever it is.

And I want to run away, not necessarily to another geographical place, but into an emotional place where I can be and let other things be and not have to think about making up stories or whether I can write or not or if it’s worth trying.

Exit, Pursued By a Bear

Felt so wretched this morning. Try and list the reasons? Would that help? I don’t even know what they are. All the little frustrations and irritations of the week? Worry over my cat, who is still not eating well, refusing the kidney-friendly food recommended by the vet, and her old food if I try to sneak in her medicine? Apprehension at the opening up of the lockdown?

All of the above. The daily world has enough causes for anxiety without digging into the past. But the past never goes away, it’s in everything I do and feel, and the same emotions I was feeling fifty years ago well up again, the shame, frustration, self-hatred. I thought they would go away when I grew up, that they were caused by external circumstances, but they’re still there, and am I any better at dealing with them? Have I learnt anything over half a century? Maybe this: that whatever else may change, these feelings never do.

You know, you start something with good intentions, you make it a habit, and then a day comes when you think: ‘F*ck it, this isn’t working, I’m not doing it any more’.

This may be that day.

Trying Not Trying

After I’d submitted my post yesterday, I realised I wasn’t happy with what I’d posted. At some point I’d slipped into the idea that my self-reflection (or wallowing, as it can also be called) was a kind of addiction. But this buys into my brother’s idea that I get a kick out of being miserable, and want to bring everyone down to my own level, as though unhappiness is a choice that I make and that I can stop any time I like – well, okay that does make it sound addictive, I can see where that idea came from. But it’s not quite what I meant, and I don’t want to be misunderstood, and I want to apologise to anybody who has to deal with the consequences of a chemical addiction, either their own or somebody close to them, and I’m sorry for any hurt or offence I may have caused by that analogy.

I know when I had the thought that triggered that post, the evening before, it made a different kind of sense, and it seemed very clear (as they always do), but now I just can’t think what it could have been.

Now I’m sitting here and I thought everything would come, but it isn’t. Staring out of the window at the early morning street, which seems no more or less busy than it has at any time in the last four months while I’ve been doing this regularly.

I sat on the bed this morning as I always do when I’m getting up, and noticed that although I was only inches away from the mirror, I wasn’t looking at it. I’ve said a lot about that mirror recently, but, as I realise now, I don’t actually look at it. Mostly I look at the floor, or I don’t look anywhere. Looking at my own reflection is a conscious choice, and mostly I choose not to. I remember sitting and looking at myself one morning – I think it was at the therapist’s suggestion, it feels like a long time ago, when we were still meeting face to face, but I also remember writing about it – I think the idea was to encourage compassion for myself, but what I remember was that it made me cry uncontrollably – not because I didn’t like the way I looked (although of course I don’t) but because of the misery and the pointlessness and emptiness in my eyes. I haven’t tried it again since, and I didn’t try it this morning.

Does accepting myself mean accepting all my failures? Does redefining ‘failure’ as ‘a learning experience’ make any sense if there’s nothing new to learn, or nothing that you can see and implement other than: ‘stop trying’? I’ve tried to make myself a ‘better’ person and it highlighted my faults and made me stressed and anxious and even more self-hating than I already was. Now I’ve stopped trying I’m probably becoming a worse person, but I’m trying not to care so much.