madwoman in the attic – Page 15

21 August 2020

My Two Penn’orth

Chatting on the Dyspraxic Adults Facebook page yesterday evening, I was asked if I was sending my experiences to the All Party Parliamentary Group on dyspraxia. The website says: ‘The inquiry would welcome evidence in particular from: People with lived experience of dyspraxia…’

Seems like a brilliant idea but… the deadline is next Friday. Well, that’s ok, I suppose – I wouldn’t come up with anything better in 6 months than I can in a week, but…

Where to start? Some of the stuff that I’ve already posted on here, I suppose. My experiences and feelings about my life and myself; my efforts to find help/counselling/self help over the last thirty-odd years (and the massive failure of those attempts); the chance that my current therapist had a previous client who was diagnosed as dyspraxic, and the similarity of our tales of woe (short term-memory, time management, untidiness, general chaos etc) prompted her to suggest that I look into it; reading about it on the web and a huge light bulb finally going on in my head; getting the contact details for her previous client’s assessor and getting a formal diagnosis.

I had a rummage through old blogs from early 2014 and found this:

When I was a child and teenager, just the idea that I might have a condition that needed treatment would never have entered anyone’s head, I was just shy, moody and difficult and I needed to get over myself and get on with it. I was 35 when I first went to counselling, and even then my Dad was very sceptical…
I don’t think I’m particularly ‘depressed’ in the sense of having a treatable condition. I just have a personality that people sometimes find disturbing or alienating, but I am who I am and I can’t help that, I’ve been like it since early childhood and my adult experiences have reinforced it. However I have also found ways of getting by – coping strategies – that seem to mask my deep feelings, and people who see only the superficial side of my personality are surprised to discover my underlying inadequacies and insecurity.
I used to think that it was my external circumstances that brought me down, not having a satisfying relationship or job or any deep satisfaction in my life, but I’ve done things to try and change that and I still feel the same – maybe because I still don’t have any of the things I just listed. It’s probably those flaws in my personality that prevent me from being able to have any of those things. I’m aware that all this becomes a self-fulfilling prophecy, but I can’t see any way round that.
Counselling seems to end up as regular dumping sessions going around in the same old circles and eventually the counsellors suggest that as I don’t seem to be making any progress we might as well stop. I think I must be the client from hell…
Linda Rushby 24 January 2014

Seems like that could be quite a good start

20 August 2020

Meltdown in Sainsbury’s

Let me start this post by stressing that I am not anti-mask. I don’t feel very comfortable wearing one, but I understand the reasons and am quite happy to conform – in principle. But today I had a bit of a meltdown in Sainsbury’s.

I’ve been wearing a scarf over my nose and mouth for shopping since the rules came in (and I’m still avoiding going into shops as far as possible anyway). When my daughter came to stay, and we were going out more often, she gave me two fabric masks that she had spare. They’re both in horrible flowery printed fabric, which I hate, but that’s probably why they were the ones she didn’t want either.

A few days ago I read about a study which tested the different types of face covering, and found that properly made fabric ones are the best, better than just a folded scarf like the ones I’ve been using. So I took the less hateful of the two to Sainsbury’s this morning, and put it on before I went into the shop.

The problem I had was that I couldn’t get the elastic to stay behind my left ear – and also my glasses kept falling off. I remember I had the same problem (with the elastic) the first time I tried to put it on, when my daughter was here, and she helped me with it and got it to stay on. This morning I was on my own, and had no idea what subtle thing she’d done to it to make it work. It was bad enough walking around the shop, but when I got to the self checkout it all went horribly wrong – I think partly because I was looking down – it kept popping off, and my glasses kept falling off, and I was trying to hold it on with my left hand and scan and put the stuff in the bags with just my right hand – a couple of times it came off altogether, but what could I do?

Writing this now, it occurs to me that I often have problems with the self checkout, so you might ask, why don’t I go to the staffed checkout? But the answer to that is that if I’m going to make an idiot of myself I would rather not have someone watching me – I know that the self checkout doesn’t make me invisible, but at least I don’t have to acknowledge and interact with another human being when I’m f*cking up the simplest tasks and being that crazy old lady that nobody wants in their shop.

And this is the thing that will never go away. There isn’t any way round it, no solution to the problem of me being me. I can try to hide – and that’s easier now than it used to be, now I can just hunker down and avoid going out into the world of rational human beings and mature adults, the world where the normal people are.

19 August 2020

Decisions…

I listened to that TED programme about decision making again yesterday. It takes me several goes before I take in what I’m hearing – same with reading, watching telly etc. This has always been the case, but I’ve always taken it for granted. Interesting to learn that it is typical of dyspraxia, and not just because I’m slow and stupid and don’t pay attention, which is what I’ve always believed. Or rather, maybe I am all those things, but there’s an underlying reason for it.

The format of the programme is that they interview people who have made TED talks about whatever the theme is that they’re talking about. One of the contributors yesterday was talking about how ‘hard’ choices are not always ‘big’ choices, and ‘small’ choices are not always ‘easy’. Their definition of a hard choice is where there isn’t a clear distinction between whether one option is better or worse than the other(s) – it may be that they’re all better on some criteria, but not on others. I recognise this problem very well – every day so much of my emotional and mental energy gets sapped by chewing over trivial decisions, because I can’t stop myself going round in circles trying to make comparisons between different factors. When I was a student in the 1970s, the focus was on ‘rational’ decision making, assigning probabilities and utilities to various outcomes and devising models, like cost-benefit analysis, to establish optimal courses of action. I’m glad to see that the field has moved on since then.

Another speaker talked about the importance of ‘committing’ to your choices. If I understand correctly, this is about coming up with a satisfactory explanation for why you made that choice rather than another – satisfactory to yourself, that is. This sounds like post hoc rationalisation, but evidently it makes a real difference to the subjects’ later attitude to the choices that they’ve made.

Just writing that now makes me think that there could be huge ramifications from this, in the ways individuals’ beliefs are formed and solidified. For example, what might it say about people who voted for Trump, or Brexit, and then find themselves having to live with the consequences? It also says something to me about the importance of narrative, or story – the stories we tell ourselves. And what about uncertainty? And unintended consequences? Because of course we can’t always predict the outcomes of our choices, or the likelihood of ‘success’ (however that is defined). And never forget the old cliché about ‘for want of a nail…’, or the more modern version, ‘the butterfly effect’ – what did I say a few weeks ago about banal events that turn out to be surprisingly significant, and momentous events that turn out to be surprisingly banal?

Well, this post started out feeling quite trivial, maybe even flippant, but in the writing it has triggered something in my thoughts, both about how my mind works – how I can never settle on a conclusion – and how the world works generally.

18 August 2020

Going Through the Motions

Going Through the Motions
Get up and do what you always do,
even though your head is full
of all the times it hasn’t worked before;
of all the reasons why it doesn’t work;
of all the many ways it might go wrong;
of all the problems you can’t imagine
until they happen.
You want to run away and hide,
but you’ve tried that before,
and it never worked
so why should it now?
This is life,
this is how it works.
Stumble on,
from one day to the next
and maybe you’ll
get away with it
for one more day.
Linda Rushby 18 August 2020

There was a post on the FB dyspraxia group asking how many members write, and what we write. I started thinking about poems I’ve written down the years which relate to my dyspraxia (even when I didn’t know that’s what it was). They tend to be the ones I don’t share much, because I don’t expect people I know to understand them or like the fact that I’ve written them about myself. The two I first thought of were ‘Cahos’, from 2005 (oh, look at that typo again – I may make that the actual title of the poem from now on) and ‘The Awkward One’ (2017, I think).

I saw the post at bedtime, and started going through my Google drive from my phone looking for the two I’ve mentioned and to see how many more I could find (a very bad idea when I was supposed to be going to sleep). And then when I got up and was doing my morning routine, I came up with the one above.

I could probably fill a whole book, but I doubt it would be very popular. From one point of view, these poems are seething with self-pity, self-loathing and shame – which is why I often keep them to myself. On the other hand, they are also searingly honest, full of pain, sadness, regret, frustration and barely suppressed anger. Both of those descriptions sum up my underlying emotional landscape a lot of the time.

The anger in particular WAS COMING OUT A LOT IN MY THERAPY SESSIONS towards the end of last year (oops, must’ve hit the caps lock without noticing, but that also seems quite appropriate!) I suppose my current task is to learn how to deal with it without turning it onto myself – incredibly hard and stressful, but I am trying.

One way of doing that is to have routines and stick to them even when I really don’t feel like it. Yesterday I skipped my weekly yoga-in-the-park session because I convinced myself it would rain – but then it didn’t. And I felt bad for making that an excuse for my lack of commitment. So I’m trying to deal with that.

I heard a podcast of the TED Radio Show on BBC R4Extra yesterday, about choice and making decisions. I need to listen to it again, then maybe I’ll have something to say about it.

14 August 2020

Reading – (to be continued…)

This morning, I did something I haven’t done regularly for years – read in bed. For most of my life I’ve read in bed both at night, before falling asleep, and in the morning, after waking up. Then when I was regularly attending the sleep clinic in 2006-07, I was told that I needed to train my body/mind to associate being in bed with sleep and nothing else – if I was awake in the night for more than twenty minutes I should get up, go to another room and do something quiet and relaxing, and only go back to bed when I was ready to go back to sleep. Unfortunately, this never really worked – I could be awake in another room for two hours and feel myself dozing off, then go back to bed and lie down and my brain would be wide awake again. Over the last few years, I’ve started listening to the radio in the night – or rather, downloaded plays and readings from BBC Sounds – and sometimes I fall back to sleep, and sometimes I don’t, but I’ve never really got back into that habit of always reading in bed.

But it bothers me that the only time I read whole books the way I used to is on holiday, or long journeys – and even then, it’s been replaced by listening and/or crocheting. When you’re reading, you can’t do anything else, but if you’re being ‘read to’ (ie listening to the radio, or audiobooks) your hands and eyes are free to be doing something else – like crochet – or any other kind of handicraft, (or even chores come to that). And because I only read in fits and starts (often, to be honest, when I’m on the loo), I never really get into what I’m reading, not helped by the dyspraxic effect that I don’t take in what I’m reading on the first time through, and am constantly forgetting who’s who and what’s happened.

This morning, around six, when I’d already been listening for an hour or so, I decided to read from my Kindle, a thriller that came up as a recommendation based on my previous reading, and which I won’t identify because I don’t want to spoil the plot for anyone else. I’ve been enjoying it, but as I’ve only been reading it for 10-20 minutes or so a day, it’s been slow going, and I’d started to feel that it was becoming a tad repetitive. This morning I’d read three chapters, when, at exactly half way in (according to the Kindle read percentage), there came a catastrophic event, in which one of the protagonists was killed and it seemed all was lost. I couldn’t help but the think that the author must have read/been told the advice about having a major climax/plot reveal at the end of Act Three – and I was rather shattered that s/he’d killed off this character (or has s/he? It sounds pretty conclusive, but who knows?)

Dammit, I’ve run out of words again…

12 August 2020

Along the Way

Back again.

This does feel like a chore. I seem to have slipped back into that demotivated state where I really don’t want to do anything. Maybe it’s the heat – doesn’t help, that’s for sure. That’s quite an odd phrase for me to use: ‘for sure’. Slipping back thirty-odd years into Dallas-speak – maybe it’s the heat – though it’s nowhere near as hot as it was there, but then nobody went outdoors at this time of year, they stayed inside and froze in the air-conditioning.

This morning, doing my exercises in the spare room with the window open, I felt stifled. Usually I have a high tolerance for heat, but this is getting even me down.

Taoism – must’ve been in a pretentious mood the day I mentioned it. How about Existentialism? Let’s throw that into the mix.

My yoga teacher said (a while ago now, must be, because we were in the Community Centre at the time, not the park), that the difference between fate and destiny is that Destiny is the true purpose of your life, what you should be doing if you allow everything to happen as intended (by whom? The Universe, or God, or whoever). But Fate is what happens to you anyway if you’re not following your Destiny. I liked that, I thought it was a nice distinction, even though I don’t believe there is such a thing as a ‘True Purpose’ to the Universe that underlies everything that happens. Why should that be? I suppose, to my ‘left brain’ (if we want to go back to that cliché) it’s quite clever, because it allows an ‘out’, as positive-thinking based philosophies often do: ‘Oh well, things didn’t turn out the way you wanted or expected, but that’s because you didn’t want it deeply enough, or you didn’t believe in it enough, or because the Universe has a different plan for you, which you can’t see right now, but one day you’ll see why it happened this way.’

Looking back over life, or history, it’s easy to see the Way that brought us here, the turning points, the (sometimes) tiny events that can trigger enormous consequences. We look back, and we construct a pattern (because that’s what humans do), and we can see that, well, that had to happen for this to be the way things are now. But we can’t know what would have happened if that point hadn’t turned, or had turned in a different direction – we can speculate, perhaps, but we can never know.

The example that just popped into my head wasn’t ‘tiny’ at the time – in fact, I’ve always thought of it as a tragedy, until just recently: the fact that my grandmother was widowed with five children at the age of forty – but if she hadn’t been, she wouldn’t have moved from Manchester to Cleethorpes, and my parents would never have met – pretty fundamental, from my point of view (and my children’s and grandchildren’s).

More along this thought path another day, perhaps.

11 August 2020

Untangling Dyspraxia

I was trying to think what I would write about this morning, then saw this post on the Dyspraxia Adults Facebook group and it got me going in reply… also helped that what they were asking about was something that was already on my mind.

I didn’t get my Dyspraxia diagnosis until I was 42 years old when I was doing a masters at university… The university gave me a lap top to support me through the course but no human support.
I am 49 now and have never managed to unpick what issues I experience are down to my dyspraxia and what are just my personality … I would very much like to know what I should be seeking support for and what I should be accepting as part of my personality.

Here’s my reply:

I was diagnosed with dyspraxia at the age of 64. It’s taken me almost two years to start to really engage with it, and, like you, to try and sort out what is down to my dyspraxia and what my underlying personality.
It seems to me, looking back over my life, that so many things I’ve always considered part of who I am (social anxiety, interacting with people, untidiness, forgetfulness, always being late, inability to make decisions, not being able to finish things without giving up, self loathing etc etc etc) can be traced back either directly to dyspraxia or to the way it was dealt with (ie not at all) during my childhood and adolescence – in fact pretty much my whole sixty-plus years worth of life. In other words, my ‘personality’ has been completely shaped by it, and I don’t think it’s possible to separate the two – I’m sorry this probably isn’t very helpful!
Even since I’ve had the diagnosis, trying to tell other people – friends and family – about it doesn’t seem to help, because they don’t understand and either think this is just something I’ve read somewhere and/or that it’s just part of my being self-critical and ‘beating myself up’ and I’m not really ‘that bad’, or perhaps that I’m just making excuses for not listening or being chaotic.
But I have found being on this forum (which I only joined a few weeks ago) and reading about other people’s experiences and struggles is helping me to see that the problems I’ve lived with ARE real, not just excuses or down to “negative attiudes”.’

Well, I’ve just posted that, so don’t know what they will make of it.

What I was vaguely thinking about before that was that a few days ago I think I mentioned Taoism in passing at the end of a post, and was going to go back to that. The connection is me thinking about the ‘Path’ I’ve taken through life, and how it might have been different if I’d understood myself (or been understood) better when I was young. Because it seems I’ve been on this quest of self-discovery for a long time.

10 August 2020

#amwriting, #notwriting – What is the point?

I was quite surprised earlier this week to discover that I was attempting to write 500 words daily as far back as April 2005 – six months before I even started blogging – and possibly even earlier than that (I haven’t gone digging any further back).
Having said that, I just checked the oldest of the clutch of backup CDs that I dug out the other day – dated 2 November 2004 – on which I found a folder called ‘Journal’, containing another folder called ‘October’. I opened the file from 1 October and the first para was as follows:
“Friday, 01 October 2004 There was an interview on Radio 4 last night with Grahame Greene’s biographer, apparently GG used to set himself targets of writing 500 words at a session, don’t suppose what he wrote was drivel, though.”
Somehow the use of the word ‘drivel’ suggests to me that I’d already been writing that journal for some time – I’m not sure any of it’s been preserved for posterity – though there are earlier paper journals lying around. I remember buying A4 lined Pukka Pads from a cheap stationers in Bedford which has long since gone out of business. But I definitely started writing daily at the beginning of 2000.

Well, all that was what I wrote on Saturday, until I got a phone call from a friend asking for help with uploading the current Southsea Storytellers group anthology (‘Flights and Fancies’) to Kindle. As usual, there were a few annoyances where what appeared ok in MS Word didn’t look so good when uploaded, but I went to see him and we managed to sort them out between us (apart from the placing of images on the page, which never works, even in professionally published books). Always another learning opportunity.

When I got back at lunchtime, I didn’t feel like resuming this post, and yesterday I decided to go out for breakfast before going to writing group (which used to be my habit on Sunday mornings). The place where we now meet, by the beach, is different from where we used to, and a cafe en route, which just happens to be one of my favourites, only reopened last week – seemed like a good excuse to skip blogging.

This morning I didn’t want to write about anything at all, but as I’d already got a couple of hundred words from Saturday, I thought I could add to that, and now I’ve done another two hundred justifying why I’ve missed the last two days, I’m on the home straight.

Does this idea of setting a quota every day help at all? I really don’t know. I can feel myself moving towards not writing anything again. Some mornings it just feels so stressful, but it’s not usually so bad once I get started – like everything in life. But once again it raises the perennial question of whether there is any point or value in writing like this, and I honestly just don’t know the answer to that.

7 August 2020

Tell Me the Old, Old Story

I think I surfaced just about bang on sunrise this morning: 5:40. I went to the window and saw the pink glow creeping over the house roofs, then left the gap in the curtains and went back to bed, watching the colour briefly suffusing the wall. At least it’s sunny – well, it was for most of yesterday too – the rain didn’t last long.

Am I feeling any more sunny this morning? Maybe. Yesterday did not turn out to be a good day. I spent most of the morning digging through old laptops, archived files and a set of data CDs and DVDs which I burnt as part of a back-up system around 2005 and 2006 (amazed myself by finding them, although I knew I’d seen them somewhere recently – well, in the last three years at least). I was looking for photos – a specific photo, in fact – of my cat from October 2005, when we first got her, because yesterday was her fifteenth birthday and I wanted to make a post about it on Facebook, with then-and-now pictures. I did it partly because I suspect she won’t be around to see another birthday, and I am preparing myself for the inevitable letting go, but also because her entry into my life was such a bizarre turning point – and yesterday I not only found the background to her name, which I’d saved in one of those fifteen-year-old files, but my journal entry for the morning of the day we brought her home – before I knew what a shit-storm I was initiating. And that photograph (on one of the back-up CDs), which featured, ten days later, in the first blog post I ever wrote, on a blog called ‘Husband or Cat?’ on a platform which no longer exists.

I could tell that story again. Should I? There are people who know it already – at least one of whom might even be reading this – in essence, at least, even if not in detail. But the details are still there, still documented, still accessible. It’s an odd story, full of drama, and passion, in its way, with a beginning far too implausible for fiction, and an ending… how did it end? Well, I guess – at least, as I’ve said before about all the world-churning choices I’ve made in the last fifteen years, if I hadn’t done what I did, I would never have known how things would turn out if I did, now would I?

I suppose that’s what fiction’s for – to explore the other side of the ‘what if’ – but I don’t have the energy or inspiration for fiction. Maybe that’s why I was compelled to make the choices I did – because it was the only way of finding out? When I think of the dreams and expectations I started with, it’s true that none of them quite worked out as I thought they would, but they shaped my life nonetheless.

I was going to write about writing advice – and Taoism. Another time, maybe.

Category: madwoman in the attic