Category: dyspraxia

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Making Stuff

If you should happen to see me sitting and apparently doing nothing, I can pretty much guarantee that I won’t be ‘resting’. My mind will still be whirling around, jumping from one thought to the next and doubling back on itself without ever reaching any conclusions. I might be re-running an ancient conversation in my head, thinking of what I could have said differently to prove my point irrefutably, or composing a poem or a blog post, but most likely I will be thinking about what I should be doing instead of sitting there and thinking. This was brought home to me yesterday when I was facing the state of my kitchen table in the wake of a week spent (intermittently) making two birthday cards.

The process of making cards, while both creative and fun, is also quite stressful, and the clearing up afterwards even more so. It involves a lot of processes, with lots of bits of equipment and materials, some of them very small, others which are messy (glue and ink), and great potential for things getting lost, spilt, sticking to each other, hiding behind each other etc. As well as that, the creative process itself, the design of the thing, from sitting down with a mental connection such as: ‘Laura – tea and cakes’, ‘Chris – fishing’, ‘Simon- robots and/or dinosaurs’ (my 34 year-old son, by he way, though it could equally be my 5 year-old grandson), assembly of any materials relevant to that topic and trying to come up with something significantly different from last year’s effort is quite taxing in and of itself. Because I’m making them to give to other people – this has really only just occurred to me – it’s a lot more stressful than starting a jumper or blanket or whatever in knitting or crochet, when I know that it doesn’t matter what a pig’s ear I make of it, because no one has to see it but me.

Now, that is an interesting though. Making cards always implies the intention of creating something to give to someone else. Perhaps I should spend some time on using stamps, cutting dies and paper just for the fun of the process without producing anything which might be seen and/or judged by anyone else? When I started doing this craft, I was going to classes and workshops, where I was just making for the sake of it – I have stacks of cards made at those events hidden away in the cupboard, which I wouldn’t dream of giving to anyone else.

This is not what I started to write about – but I think it is a valuable insight, and it applies to lots of things I do – including writing this blog. I can do it because I know it is just for myself, although theoretically it could be read by anyone, very few people ever actually do read it, and so it doesn’t matter, there’s no requirement for it to reach a certain standard of quality, it is just itself.

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Pinball

My new glasses had been missing for over twenty-four hours. Five minutes before my Skype therapy session, I picked up a glasses case from the bookcase in the hall, which I knew I’d picked up in a previous search, but at that time I shook it and thought it was empty, this time I opened it and there they were.

I went into the front room to set up my laptop for the Skype session, for which I wore my reading glasses, but I knew I needed the varifocals for the session proper. When Skype was open, I took off my readers to put the other ones on. They weren’t on the sofa next to me, they weren’t on the bookcase. I went back into the hall, just to make sure I had actually picked them up and brought them into the front room. I had walked maybe four metres up the hall and into the front room with them. I went back into the front room and checked the sofa again. Sitting on the sofa, I glanced round and saw a black glasses case on the rosewood table, just in my eyeline. Was that it? I walked over and picked it up and opened it – yes, there they were. I must have put them down on the table (amongst all the other junk, including another glasses case) as I walked past it en route to the sofa and the laptop. From start to finish, this took less than five minutes, but I had no recollection of where I’d put it down because things like that don’t register in my head.

Now, you’re probably thinking: ‘Oh, that happens to me all the time!’ or ‘We all have days like that!’ but that is not the point. My entire life revolves around things like this happening, so frequently that I couldn’t possibly count how many times a day (and I’d forget to anyway). Why am I focussing on it this morning? Because it’s symbolic.

I am thinking about fractals and granularity. Incidents like this happen at a microscopic level, but if I zoom in or out on my life, I can see them happening in different ways, at different granularities, over different time periods. They bounce around my head and it’s impossible to impose any structure over them, or to focus on more than one at a time, or to string them together into any kind of rational order. I have been card-making all week and that is all about tiny things and tiny actions, but what order do I need to do them in, and where are the things I need, and now I’ve found this, where did I put that which I had in my hand only minutes ago?

My therapist says: ‘that’s because you’re multi-tasking’ but with dyspraxia ‘multi-tasking’ is impossible, because you can only focus on one thing at a time and you lose track of everything else, and so you constantly bounce around like a pinball.

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Spring Thoughts

Sun shining again this morning. There’s something sneakily deceptive about the tail end of winter and start of spring because, although it might be sunny, it’s not actually warm enough to throw off coats and jumpers, until that day when you find yourself walking down the street in your winter coat and notice that other people are out with bare arms and legs (scrub the latter because these days there are some English blokes who will go out in shorts at any time of year – very different from how it was in my childhood). Oh look, the grammar checker wants me to change ‘bare’ to ‘bear’ in that previous sentence – must be thinking about the US Constitution (or is it the Bill of Rights?) Either that, or it’s about men walking around with fat arms covered in dense fur, like bears – that’s an image that’s now lodged into my brain and won’t go away in a hurry. The explanation given is: ‘possible word choice error’ – nope, sorry mister grammar checker, I said exactly what I intended to say, and I’m right and you’re wrong, as usual.

The coming of spring should be a source of joy, so why am I so grumpy? Partly because of the shambles in the garden, I guess – not that I’m ungrateful for my snazzy new shed, but it’s brought home to me the amount of work that needs to be done everywhere else. Gardening is one of those things that I have in times past been very enthusiastic about – or enthusiastic about planning, thinking and fantasising about, at least. Like most things which require sustained effort and attention, I rapidly lose interest when the results don’t live up to my hopes – or just generally lose interest when other things take over my time and attention.

A recent discussion on the dyspraxia Facebook page centred on the word ‘dyspraxia’ itself, which has been concocted from Latin or Greek (maybe both) to mean ‘bad at doing’, just as ‘dsylexia’ translates as ‘bad at reading’ or dyscalculia ‘bad at arithmetic’. (BTW, I did pick on the fact that I mistyped ‘dyslexia’, but left it because it amused me.) To me, ‘bad at doing’ sums up everything perfectly, but some contributors to the discussion found it excessively negative, and were arguing for the use of the term preferred in the US, which is ‘Developmental Co-ordination Disorder’, or DCD. I don’t like this at all, and not just because it’s American. ‘Developmental’ makes it sound as though it’s something that occurs in the developing child, and hence the implication is that you can ‘grow out of it’, which I can confirm is a long way from the truth. Then ‘Co-ordination’ puts the stress on the physical effects on gross motor skills, reminiscent of the old term: ‘clumsy child syndrome’, whereas the main impacts for me are those on brain functions: working memory, planning, organisation, absorbing and retaining information, time management, lack of concentration etc.

Not to mention, shit at gardening.  

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Struggling

I dreamt last night, and remembered it for once. I think I’d moved house – at any rate, I was living in a different house from this, a more modern one, though to me ‘modern’ means any time from the 1970s onwards, I’m not used to anything more ‘modern’ than that. I don’t think I’d been living there very long, and I kept finding things in unexpected places – I know that’s not unusual with my memory, but among them were things I definitely didn’t recognise. The only explanation was that there was someone else in the house, or coming into the house, moving things around and leaving things that weren’t mine – I’m sorry this is very sketchy but my memory for dreams is never very clear. I was trying to explain to somebody – in person or on the phone, I can’t remember – about this sense of another person coming into my house, when I found a young blonde woman with a little girl was there with me, and she seemed to think it was her house, – she wasn’t the person I’d bought it from, but she clearly had a key. I tried to reason with her but she got angry. Then I thought I should call the police and get them to come while she was still there, but I couldn’t find my phone and while I was looking for it I woke up.

I lay in bed for quite a while and got up late. I felt overwhelmed with anger and despair, as I sometimes do in the mornings. I have got a lot of medical stuff to deal with over the next few weeks, I need to make appointments for blood and Covid tests, which I tried to ring up about yesterday (the GP and hospital respectively) but couldn’t get through. And I need to book my car in for its MOT, and started to think: the MOT is due by the 7th, and I have to go to the hospital on the 17th, and need a Covid test within 72 hours, so what if I book the test for the 15th but then find the car fails the MOT, then I would have to take the van, but the drive through testing at the hospital is under cover, so would I be able to take the van? And will the van even start? I need to know this well in advance so I can tell the hospital I’ll need an alternative non-drive through test. All the what-ifs, what-ifs, what-ifs and all the phone calls I need to make to sort it all out hang around me like a lead collar, and this is why I get so angry with myself. I thought I would get better with this stuff as I got older, but I never do.

I know that everyone’s struggling at the moment, but I can’t help feeling as though everyone is now just getting a glimpse of what it feels like to be me.

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Eating Elephants

This is what happened yesterday: it felt as though writing my 500 word post in the morning was the most significant thing I did all day. Some days are just like that. Around midday it got quite sunny, and I went out and pulled a few more bits off the old shed, in the process breaking the chisel for the second time, so that now there isn’t really enough of it left to get behind the planks and lever them off, which is what I’ve been doing up till now. It was an old chisel anyway, which I found in the shed when I was emptying it out, presumably left behind by the previous owner. After it broke I decided that was a sign that I could stop for the day – I’d been there for about an hour, I guess.

I keep picking away at it, not the most efficient way of doing it, I know, but I do as much as I can stand and then leave it in the hope that eventually it will get done (like the bookshelves which have, unsurprisingly, now filled up with clutter in the absence of me tackling them in an organised manner). The front and half a side (of the shed, that is) have now gone, leaving a shell which looks as though any self-respecting storm will blow it away, except that, remarkably for this time of year, we have had no strong winds for the last week. I’d quite like it if the back (left hand side in the photo above) could stay standing as there is no fence behind it, just a small wall, but that’s probably too much to hope for. Eventually, the new shed will go along that boundary, but I need to get rid of the old one first. In the mean time, half of the stuff that came out of it is still in the garden or the kitchen (depending on how hygienic I considered it to be) waiting for the new shed to be moved to its final position, along with the accumulating debris of the old one.

In the afternoon, I made some small progress on the jumper I’ve been knitting (still not sure about the design, which I keep having to re-do), then the yarn cake fell apart (as they tend to do when approaching the end) and descended into an impenetrable tangle, which I spent half the evening trying to sort out till I fell asleep over it on the sofa. I also started on a new crochet pattern for a blanket, which requires working with three cakes at once – what could possibly go wrong with that? The plan is to convert three of the many cakes I bought online last year into a blanket which will be of no use to anyone and shoved somewhere in the spare room if it ever gets completed.

Well, baby steps, hare and tortoise, eating an elephant, etc. And another 500 words bites the dust.

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Tackling… a Metaphor

Today Backup and Sync tells me that it can’t sync 7107 items, but it is syncing 7130 of 18221. Or something like that. The numbers change every time I look. But I think this is a good thing, because yesterday it couldn’t sync 20837, which I think means that the numbers of files it wants to sync has gone down, and I take that to mean that some of the files which were formerly on the google drive are no longer there – so my deletions have achieved something. But, the space is still full. Is this because of what’s being uploaded from my phone?

Why do I keep harping on about this? Because I’m sure there has to be a solution somewhere, somehow. It’s a problem I’ve ignored for a long time, but always assumed there was a simple solution. Now I’ve decided to try and resolve it, it’s turning out to be a lot more challenging than just deleting some old emails and photos.

I have just taken what feels like the nuclear option. I have disconnected my account from Backup and Sync. But is that really what I wanted to do? Does this mean that I can’t now access my files on Google Drive, even to delete them? What does that mean for my emails? And my photos? And sharing files between my PC and other devices?

I have written an awful lot of words on this topic (I’m guessing about 4,000, but I haven’t checked). It’s not the only thing going on in my life at the moment – I can walk away at any time and forget about it for hours on end. But it feels symbolic. If the issue is about stuff lying around on my electronic ‘desktop’, isn’t that very similar to the state of my physical desktop, my study, my whole house? Things which have just been left to lie where they are, no real system of filing or tidying away, just overwhelming clutter? And what about my mental state – isn’t it all a perfect metaphor for that too?

I have been ignoring the messages relating to my emails for years, with only occasional bursts of enthusiasm for going through and deleting them when the warnings become too dire. My old Yahoo email currently has 7,526 unread emails – that’s right, unread, not undeleted. But taking yesterday as a typical example, I received 12 new ones, of which two, relating to an online order for cat food, are of significance. What about the rest? None of them are actually malicious or a nuisance (unless there were others that got sent directly into the spam folder), they’re mostly from companies I have accounts with or organisations that send out newsletters I don’t want to unsubscribe from because you never know when there might be something that I’m interested in. There’s even one from someone who wants to tell me how to stop procrastinating – I might unsubscribe from that if I ever get round to it.

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Tackling the Chaos – the Saga Continues

I started yesterday talking about the latest part of the Google drive saga, with the discovery of the ‘Desktop’ folder, which was inside the ‘My computer’ folder, which was inside the ‘Computers’ folder. There were two other folders in the ‘My computer’ folder, one called ‘Documents’ and one called ‘Pictures’. I opened ‘Documents’ and it contained one other folder, called ‘Bridport’, which rang a vague bell, but when I opened it, it was empty. I tried drilling down through some of the folders in ‘Desktop’ too, and found that they were also empty.

It was very puzzling, but I went back to the list of files in descending order by size. At the top were some music files, which I didn’t want to delete because I regularly access them from my phone, but I had a go at deleting some of the photo files again. I started getting warning messages telling me that the files would be deleted ‘…from all devices…’ which spooked me a bit. Did this mean they would be deleted from my hard drive ‘Desktop’ as well? I decided to leave that until I could confirm that they were still there, and went back to copying all the photos from my phone to my computer and then deleting them from Google photos, and the ones from the latest phone backup from my phone into the ‘USB devices and SD cards folder’. This got the storage down to about 11GB again, and I left it at that.

The next day when I restarted the computer, the usual messages about my cloud space being 99% full came up. I opened Google Drive and went to the Desktop folder. Inside it was a complete list of the folders on my computer desktop, including the ‘Backup photos’ folder which I had specifically created to save the photos I’ve been downloading and deleting from Google Drive to save space. I opened it, and it contained files which I had created only the day before.

At this point, I need to explain how I organise the files on my computer. My virtual desktop is pretty similar to the state of my physical desktop (and you’ve seen photos of that). Although I am quite organised in having folders for important stuff: individual projects, my blog, poems, accounts, novel, etc etc, I create them on the Desktop and shove the lower folders and various files inside them – although I also have a tendency to save files to the desktop ‘temporarily’, so there are always quite a few odd documents or photos lying around which I don’t sort out, so that the whole thing becomes a bit of a mess, and I rely heavily on the ‘recently accessed files’.

And it seemed as if not just my phone, but all the files from my desktop (in other words, all the files I had put – and was continuing to put – on my terabyte of hard drive) were being automatically backed up to the 15gb of cloud space… tbc

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Tackling the… Whatever

Some days when I start writing without knowing what to say, it develops, and by the end I feel as though I’ve written something interesting – or at least not too shameful. Then there are days like yesterday when I start but stop half way through because I’m not getting anywhere and, honestly, I just can’t be arsed.

There are many mornings when I start off wondering what I’m going to write and my head is so full of worry and fear about things that no one but me could possibly think were worth being worried or fearful over, but the worry and fear are there anyway, so do I write about them? I am trying to stop beating myself up over this, but it’s become apparent that it isn’t really just the ‘beating up’ that’s the issue, it’s the fact that the feelings are there anyway, it’s the things that I have to do, and the things that I fail to do, and the flotsam that swirls on the dark churning maelstrom of memory.

Planning and organisation are anathema to the dyspraxic brain, because while the attention is fixed on one thing, action or requirement and trying to assemble the others required to precede and follow it, the rest of the mind-stream is charging off into completely different paths, cul de sacs and labyrinths. ‘Write it down!’ I hear you cry, but any attempt to do that initiates mind-block and stasis – a Mexican stand-off while the focussed brain tries to remember what it was thinking of in the first place.

The only way to make things stick is through rote learning and repetition, so the same things are run through over and over again. ‘Planning’ consists of reminding oneself multiple times that ‘something’ needs to be done before a certain date, which induces panic that it will be forgotten, or done incorrectly, or will take a lot longer than the time allowed, and ‘writing down’ becomes a substitute for action.

In situations like this, ‘self care’ can only mean ignoring all that and doing something pleasantly mindless (or mindful) while all that other stuff goes to hell in a hand basket. Which famous author said: ‘I love deadlines, I love the swooshing noise they make as they pass by’? Can you remember? No, neither can I.

Incidentally, the Word grammar checker wants me to change that last ‘I’ to ‘Me’. Grammar checker, in this instance you are wrong, so wrong. How about if I turn it into a question? Can I? See, you can’t object to that, can you?

Why do I even leave the grammar checker turned on? Because it’s the default, and I can’t be arsed to change it, so I just ignore it because I have more confidence in my own understanding than in its – except sometimes I can’t see what it’s objecting to, so I follow the explanation and have a good laugh at its incompetence.

The routine is: write 500 words. And so I have.

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Murmuration

This morning in bed I listened to a radio play, ‘Murmuration’, which I’d downloaded without reading the description, so I didn’t know what to expect. It was about a man who lived alone in a flat and heard voices in his head – various characters with different personalities – aggressive, childlike, and one a bombastic circus ringmaster – who told him who he was and what he should do. At one point he is taken to hospital and given drugs which silence the voices but also make him feel numb all the time, taking away the pain, sadness and anger but also positive emotions like joy, enthusiasm and hope, which reminded me of my experience with Amitryptyline.

This is not quite what I mean when I say I hear words in my head, or have arguments with myself. Despite all the stuff about Belinda, Melinda, Cassandra and Cat-By-Herself, or about gremlins, I know all that is metaphorical, and at all times I am just me, myself. Admittedly, at different times my thoughts – and the words in my head – manifest in different kinds of behaviour, and I don’t have any control over that, I can’t choose who I am going to be at any particular time. I wish I could. I think about the times when I thought I could ‘reinvent’ myself, focus on one of those aspects (usually Melinda) and let her have her head – when I was doing my PhD, or after I left my husband, or went travelling, or moved here – my ‘running away’ times, in other words. In many ways they were when I was at my ‘happiest’, because even though I still had bad patches within that, I had hope that somehow I was moving towards a sunlit plateau where the world was full of joy and light.

Yeah, I know, embarrassingly unrealistic.

The play was described as ‘darkly comic and heart-warming’ (I read the description afterwards) and had a sweet, hopeful ending, as the man makes friends with a neighbour who draws him out of himself and out of his flat into the world outside.

The writer had worked with MIND and with people who hear voices in this way while developing the play, and also played the pivotal role of the neighbour. The description says:

‘A diagnosis of voice hearing has long been stigmatised in western culture, but in recent years there’s been a new approach that helps hearers to understand who their voices are and where they come from.’

It made me think about how strange the workings of the human mind are, how little we really know about what goes on in others’ minds, or our own, come to that. How much of what we experience is down to underlying conditions like dyspraxia and autism, how much is triggered by early childhood experiences and trauma, how do these interact and continue to interact and develop through our experiences of relating to other people as we pass through life? Who among us is ‘normal’, after all?

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Tackling the… What was the question?

I know that most of the things I worry about are unimportant. I know that the worst scenarios will probably never happen.

My attention bounces from one thing to the next, to the next, to the next ad infinitum, and I can’t retrace my steps to see how I got there, and I can’t see where it’s going, and the track of my thoughts goes round and back and crosses and intersects and spirals down then shoots off into another dimension and still I am no more secure in what I know, I have reached no conclusions, made no plans, discovered no revelations and… what was the question again?

So far today I have: dropped a match into a candle glass and left it to burn because the glass still contained wax but no wick and I thought the match would act as a wick, but minutes later there was a crack and bits of broken hot glass on the floor (fortunately the flame had gone out); then in the shower I picked up a bottle, saw the opening was at the bottom (the only indicator that usually works and I specifically noticed it), squeezed some of the contents onto my fingers, rubbed it into my hair and then realised it wasn’t lathering because it was conditioner, not shampoo. I’m not saying either of those actions was disastrous – on the contrary, they are both perfectly normal, and I cleared up the broken glass (when it was cool enough to touch) and thoroughly rinsed my hair before trying again and getting the right bottle this time. Oh, and I lost my reading glasses in between coming out of the spare room where I do my yoga and into the bedroom to get towels for the shower, and had another look in the spare room before finding them on the book shelves in the bedroom where I must have put them all of thirty seconds earlier. As I said, perfectly normal.

So where is this train of thought taking me? And is it anywhere that I – or you, my putative reader – would choose to go?

Once again, I stare at the clutter on my desk in search of inspiration ‘A tidy desk is the sign of a tidy mind.’ Evidently, the converse is also true, as mine perfectly depicts the state of my mind. The clear space in the centre front is where my phone was, which I had to move in order to take the photo. As soon as I brought it into this room, and within reach of the wifi, it sent me a message informing me that my data cannot be backed up because my cloud storage is full, and I need to upgrade it – the Magic Data Pot in action once again. I have now downloaded all my photos up to 2019 to my hard drive, and deleted them from the cloud and my phone. When the will to live returns, I’ll do the same for last year…