Month: August 2020

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Mornings

As you probably know, I wake most days around five o’clock, and very rarely go back to sleep again after that, although I usually lie in bed for a couple of hours brooding (or reading, listening to podcasts, looking at stuff on my phone – you know how it goes) before getting up – usually around seven – and doing a half hour routine of yoga/tai chi/meditation. So over the last few months I’ve been able to notice the changes in the timing of sunrise. It always comes as a bit of a shock how much the length of daylight has reduced by the end of August, but it’s hardly surprising when you remember we’re only three weeks away from the Autumn Equinox.

Every morning I have this sense of wishing the day would go away and just leave me alone, even though I haven’t had a regular get-up-and-out-of-the-house job (even a part-time one) for over eight years. Life is still there to be dealt with, whether you have somewhere to be by a certain time or not.

I used to have this idea that one day I would find my ‘place’ in the world and when that happened I would wake every morning looking forward to the day ahead. Although I now feel that I am in the best ‘place’ I’ve ever been (or am likely to be), I’ve had to accept that (along with many other things) starting each day full of enthusiasm and positivity is just not in my power.

Why have I started writing like this today? I don’t know, except that maybe I’m not quite so deep in the usual existential despair (or ‘gloom and doom’ as some would colloquially call it) that I can’t step back a little and consider it analytically for once. Is it down to lack of sleep? Probably to some extent, but that begs the more fundamental question of how I can get my body (or rather brain) to sleep any more than it always has, a question for which I’ve never found an answer. A more interesting thought is that this probably explains why so many of these posts tend to be so dark, and the question begged by that is: why try and write at this time of day, when I’m nearly always in a bad mood?

That goes back to advice I read – probably 40 years ago now – in ‘Becoming a Writer’, by Dorothea Brande, a classic from the days before the world became swamped by books of writing advice. The one thing I still remember from this book was to write first thing in the morning, before your conscious brain has a chance to elbow out the subconscious completely. Over the years, I’ve striven to follow that rule, although it’s sometimes led me down some strange alleyways.

And I think it might lead me somewhere now… but I’m nearly at the end of my quota. So I’m going to leave that for now and let it stew till tomorrow.    

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Days Like That

Haven’t posted anything for the last few days as I’ve been working on my submission to the inquiry of the All-Party Parliamentary Group on dyspraxia. Don’t know what they’ll make of it, but I did it anyway. I pulled together all the bits into a first draft on Wednesday morning; edited it on Thursday; then tidied it up, did the covering email and sent it off yesterday, in good time for the deadline at 5. It was 2,750 words in the end, just fitted into four pages, a very personal rant like the stuff I post on here.

I thought I would write 500 words today, but I’ve left it a bit late… didn’t get up till 7.30 and I’ve been to Tesco, then started on answering emails, and now the morning’s half gone and I still haven’t had breakfast.

I posted a cartoon yesterday, both on my personal timeline and the dyspraxic adults group.

https://scontent-lht6-1.xx.fbcdn.net/v/t1.0-9/117389940_10156978386461853_7954745779455467567_n.jpg?_nc_cat=100&_nc_sid=8bfeb9&_nc_ohc=u4aQUO4IzlkAX_Pizl4&_nc_ht=scontent-lht6-1.xx&oh=baf1401aac35c8d355809e44d346db1d&oe=5F711DC8

On my page I got 9 responses, on the group 105 plus 20 comments (admittedly there are a lot more people on that group than friends on my page!) But although everyone can laugh at this – and lots of well meaning people say: ‘we all have days like that…’ responses from the group were more on the lines of: ‘SO relatable – thanks for sharing this!’, ‘So fucking true Linda!’, ‘Oh dear gods yes! *facepalms*’ and one lady who said: ‘does anyone else get anxiety because they have so much to do…? I’m moving out soon and would love insight on that!’ I didn’t know what to say to her – because that’s exactly how I was feeling yesterday – but I suggested she post the question as a separate post, and might get some helpful advice.

Where is the line in between ‘days like that’ and a sense of underlying chaos that pervades and disrupts a whole life?

A young man posted: ‘Does anyone ever feel alone in this world with having dyspraxia?… My family just doesn’t believe a word I say even though they know I have issues…’

Here’s my reply:

‘I think the way your parents and siblings understand and accept you for who you are makes a huge difference. When I was growing up in the 1960s there was no understanding of neurodiversity at all, just kids who were ‘difficult’ in various ways and were expected to fit in and get on with it. This left me with massive issues of social anxiety and lack of self belief which have affected my whole life. Although I have had relationships in the past (been married twice), I never feel that anyone has ever truly understood and loved the “real me”, just the idea of me they have in their own heads, and until I found out I was dyspraxic two years ago, I felt all of that was my own fault and hated myself for it. Now I live alone and am comfortable with that, but it took a long time to get here…’

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Dyspraxia and Social Anxiety

Words churning through my head… they are always there, a continuous monologue/narrative – sometimes a dialogue, even a full-blown row. Is that dyspraxia related or something else? It is there when I wake in the early hours, it keeps me awake, I am exhausted but can’t sleep. It is there in the daytime, it churns around and around, I can’t focus, I can’t settle, I can’t concentrate because I am exhausted because I don’t sleep at night.

Is this dyspraxia? I know dyspraxia is responsible for the time I waste looking for the glasses/phone/keys/wallet/cup of coffee or whatever that I put down somewhere 30 seconds ago. That’s exhausting too. Dyspraxia means I have to read everything at least twice, three times, or more before it starts to sink in. It means I often don’t take in what’s been said to me without that being repeated, too, and often I just forget anyway, which means I panic when someone does speak to me and I can’t think what to say in reply, so even if dyspraxia is not directly related to social anxiety, it exacerbates it.

Sometimes I struggle to know what to say, then think of it too late, or I think of something I could say and I want to say it there and then, and I say too much then get angry with myself. When I’m in a group sometimes I’ll think of something to say but can’t get a word in edgeways, or when it comes to my turn I’ve forgotten it or thought better of it and someone says: ‘I think Linda has something to say’ but I just say ‘it’s ok, it doesn’t matter, it wasn’t important’ even if it was. Once someone who had been facilitating a group I was in said to me: ‘promise me that the next time someone interrupts you, you won’t apologise’. If I know I’m right about something (factually) and I say it I expect people to accept it, and if they don’t I get frustrated. I hate arguments, I won’t say anything which I think the other people will disagree with.

I apologise constantly, which ironically most people find very irritating. Usually when something goes wrong, even if I’m not completely responsible, I can trace it back to some contributing factor that’s down to me, and so I apologise for that. It’s easy to assume I’m responsible, because I do so many stupid, clumsy or thoughtless things. Apologising is my way of trying to compensate for all those things I do that inconvenience others, but it often doesn’t deflect anger, but rather makes it worse – this used to happen a lot with my parents. If my apologies are not accepted I feel trapped, because I don’t know what else to do, so I get frustrated, ashamed and angry – and I always turn anger onto myself. I can forgive other people but never myself, because I’m not in control of their behaviour, but I feel that I should be able to control my own.

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The Next Fifty Years in 500 Words

I can’t use anything of what I wrote yesterday. I was trying to explain how I became who I am – as far as I understand it. But what’s the point of that? It’s only the pattern I’ve imposed on my memories from the context of where I am now.

How can I untangle how I feel about myself and the life I’ve lived and what part of that is down to dyspraxia and what is just who I am? Dyspraxia is all the frustrating, annoying, depressing, heart-sinking little stupid things that happen all day, every day. I have always known I was worthless. This is not new because I have suddenly discovered an explanation for it – it was always there.

I could carry on describing the last fifty years – university; struggling to find a job, failing interview after interview; rushing into marriage because someone asked me and I thought this was the only chance I would have to avoid going back and living with my parents; marriage broke down within two years; more shame, more guilt, more failure, all piled on  top of who I was, because of who I was; getting a job and working at it for nine years; marrying again and giving up my job at the age of 30 to become an ‘ex-pat wife’, not knowing that that would be the last full-time permanent job I would ever have; babies and post-natal depression and loneliness and coming home; getting a chance to do a PhD and thinking this would transform my life, then afterwards finding that at the age of 43 with a 13 year gap on my CV, still no one wanted to employ me despite my qualifications; more failed applications and interviews and a string of part-time admin jobs; breakdown of my second marriage, feeling trapped because I couldn’t earn enough to support myself so I felt obliged to stay; finally leaving to live on my own at the age of 54, happy to be living on my own at last, but still financially dependent on my ex – as I still am, living on a share of his pension – more guilt, more shame. After three years trying to create a new life, trying to find more permanent work, doing more training (web design), trying to write, trying to start a design/publishing business, I used money from the divorce settlement to go travelling across Europe, planning to write a book about it and support myself. Came back with even less chance of ever getting another job – did a TEFL course in Prague but couldn’t find teaching work without experience (and anyway I was a terrible teacher because of my lack of social skills and inability to explain myself). Used my share of the proceeds from the sale of the marital home to buy a house on the south coast and retire on my ex husband’s pension, where I am now, looking back over a lifetime of repeated failure, depression and self-loathing, and failing to write.

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Early Years

This is the opening I’ve written for my submission to the APPG inquiry into dyspraxia. I know it will need editing – and the post is longer than usual, because I’ve included a poem.

I was born in 1954, and at the time of writing I am 66. I was diagnosed with dyspraxia less than two years ago, in October 2018, and am still coming to terms with understanding it and how it may have affected my personality and experience of life.

I am the youngest of three children, with a sister (six years older) and a brother (four). I’m sure my parents loved me and did their best for me as they saw it, I don’t think I was ever abused, physically or sexually, but I struggle to find any happy recollections of my childhood. I felt as though my parents and siblings belonged to a closed world of ‘big people’, a perfect family unit of four, but that somehow I was the odd one out, a spare part, surplus to requirements.

I was a shy and timid child, and found it hard to make friends. I was always small for my age and late in reaching puberty. All this made me ripe for bullying – not so much the physical kinds, but the verbal, psychological kind, mostly from other girls, but also from my brother and his friends (unlike me, he was charming and popular, and still is), occasionally my father, and later my brother-in-law. If I complained, I was told: ‘you’ve got no sense of humour’, ‘it’s only a bit of fun’ or ‘don’t take any notice and they’ll give up’. Somehow, it wasn’t the teasing that was a problem – it was my response to it.

Maybe none of this is directly related to dyspraxia, but it is part of the emotional landscape of my childhood. More significantly I was untidy, forgetful, clumsy, ‘cack-handed’ and constantly in trouble at home for all those reasons. I learned to be ashamed at a very early age, and it was constantly being reinforced. Sometimes it felt very unfair, and I became resentful and sulky, for which I was criticised even more. Two years ago, my brother gave me a present – a tee shirt with the slogan: ‘The third child is always the difficult one’. Oh how we laughed.

I was academically bright, always in the top stream, and in 1965 I passed the 11-plus and followed my siblings to the local grammar school. However, although I enjoyed learning, I don’t think I ever really ‘shone’ at school – maybe because due to my shyness I didn’t engage in class. I don’t remember any teachers taking a particular interest in me or encouraging me, even though (perhaps because) I rarely did anything to cause trouble. I was terrible at practical subjects and sport, but I got on with my academic work quietly, if a little slowly, and slipped under the radar. I was always a ‘good’ girl – except at home, where I was evidently nothing but a trial to my parents.

Here’s a poem about that time which I wrote a couple of years ago:

The Awkward One

I never learned to smile.
I never learned to play the happy fool,
to put them at their ease,
to read their minds.

So I became
the awkward one,
the difficult one.
I learned to be alone.
I never learned to make a friend,
I never learned the way
to make them love me.

I hated mirrors, and cameras,
I hated the plain, sulky face
they showed me.
I knew that face,
with its curtain of straggly hair,
and that skinny body,
would never be loved.

I never learned to turn on the charm.
I had no charm.
I never learned to play the game.
I turned inside myself,
became invisible,
played my own game.

© Linda Rushby 25 March 2017
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My Two Penn’orth

Chatting on the Dyspraxic Adults Facebook page yesterday evening, I was asked if I was sending my experiences to the All Party Parliamentary Group on dyspraxia. The website says: ‘The inquiry would welcome evidence in particular from: People with lived experience of dyspraxia…’

Seems like a brilliant idea but… the deadline is next Friday. Well, that’s ok, I suppose – I wouldn’t come up with anything better in 6 months than I can in a week, but…

Where to start? Some of the stuff that I’ve already posted on here, I suppose. My experiences and feelings about my life and myself; my efforts to find help/counselling/self help over the last thirty-odd years (and the massive failure of those attempts); the chance that my current therapist had a previous client who was diagnosed as dyspraxic, and the similarity of our tales of woe (short term-memory, time management, untidiness, general chaos etc) prompted her to suggest that I look into it; reading about it on the web and a huge light bulb finally going on in my head; getting the contact details for her previous client’s assessor and getting a formal diagnosis.

I had a rummage through old blogs from early 2014 and found this:

When I was a child and teenager, just the idea that I might have a condition that needed treatment would never have entered anyone’s head, I was just shy, moody and difficult and I needed to get over myself and get on with it. I was 35 when I first went to counselling, and even then my Dad was very sceptical…

I don’t think I’m particularly ‘depressed’ in the sense of having a treatable condition. I just have a personality that people sometimes find disturbing or alienating, but I am who I am and I can’t help that, I’ve been like it since early childhood and my adult experiences have reinforced it. However I have also found ways of getting by – coping strategies – that seem to mask my deep feelings, and people who see only the superficial side of my personality are surprised to discover my underlying inadequacies and insecurity.

I used to think that it was my external circumstances that brought me down, not having a satisfying relationship or job or any deep satisfaction in my life, but I’ve done things to try and change that and I still feel the same – maybe because I still don’t have any of the things I just listed. It’s probably those flaws in my personality that prevent me from being able to have any of those things. I’m aware that all this becomes a self-fulfilling prophecy, but I can’t see any way round that.

Counselling seems to end up as regular dumping sessions going around in the same old circles and eventually the counsellors suggest that as I don’t seem to be making any progress we might as well stop. I think I must be the client from hell…

Linda Rushby 24 January 2014

Seems like that could be quite a good start

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Meltdown in Sainsbury’s

Let me start this post by stressing that I am not anti-mask. I don’t feel very comfortable wearing one, but I understand the reasons and am quite happy to conform – in principle. But today I had a bit of a meltdown in Sainsbury’s.

I’ve been wearing a scarf over my nose and mouth for shopping since the rules came in (and I’m still avoiding going into shops as far as possible anyway). When my daughter came to stay, and we were going out more often, she gave me two fabric masks that she had spare. They’re both in horrible flowery printed fabric, which I hate, but that’s probably why they were the ones she didn’t want either.

A few days ago I read about a study which tested the different types of face covering, and found that properly made fabric ones are the best, better than just a folded scarf like the ones I’ve been using. So I took the less hateful of the two to Sainsbury’s this morning, and put it on before I went into the shop.

The problem I had was that I couldn’t get the elastic to stay behind my left ear – and also my glasses kept falling off. I remember I had the same problem (with the elastic) the first time I tried to put it on, when my daughter was here, and she helped me with it and got it to stay on. This morning I was on my own, and had no idea what subtle thing she’d done to it to make it work. It was bad enough walking around the shop, but when I got to the self checkout it all went horribly wrong – I think partly because I was looking down – it kept popping off, and my glasses kept falling off, and I was trying to hold it on with my left hand and scan and put the stuff in the bags with just my right hand – a couple of times it came off altogether, but what could I do?

Writing this now, it occurs to me that I often have problems with the self checkout, so you might ask, why don’t I go to the staffed checkout? But the answer to that is that if I’m going to make an idiot of myself I would rather not have someone watching me – I know that the self checkout doesn’t make me invisible, but at least I don’t have to acknowledge and interact with another human being when I’m f*cking up the simplest tasks and being that crazy old lady that nobody wants in their shop.

And this is the thing that will never go away. There isn’t any way round it, no solution to the problem of me being me. I can try to hide – and that’s easier now than it used to be, now I can just hunker down and avoid going out into the world of rational human beings and mature adults, the world where the normal people are.

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Decisions…

I listened to that TED programme about decision making again yesterday. It takes me several goes before I take in what I’m hearing – same with reading, watching telly etc. This has always been the case, but I’ve always taken it for granted. Interesting to learn that it is typical of dyspraxia, and not just because I’m slow and stupid and don’t pay attention, which is what I’ve always believed. Or rather, maybe I am all those things, but there’s an underlying reason for it.

The format of the programme is that they interview people who have made TED talks about whatever the theme is that they’re talking about. One of the contributors yesterday was talking about how ‘hard’ choices are not always ‘big’ choices, and ‘small’ choices are not always ‘easy’. Their definition of a hard choice is where there isn’t a clear distinction between whether one option is better or worse than the other(s) – it may be that they’re all better on some criteria, but not on others. I recognise this problem very well – every day so much of my emotional and mental energy gets sapped by chewing over trivial decisions, because I can’t stop myself going round in circles trying to make comparisons between different factors. When I was a student in the 1970s, the focus was on ‘rational’ decision making, assigning probabilities and utilities to various outcomes and devising models, like cost-benefit analysis, to establish optimal courses of action. I’m glad to see that the field has moved on since then.

Another speaker talked about the importance of ‘committing’ to your choices. If I understand correctly, this is about coming up with a satisfactory explanation for why you made that choice rather than another – satisfactory to yourself, that is. This sounds like post hoc rationalisation, but evidently it makes a real difference to the subjects’ later attitude to the choices that they’ve made.

Just writing that now makes me think that there could be huge ramifications from this, in the ways individuals’ beliefs are formed and solidified. For example, what might it say about people who voted for Trump, or Brexit, and then find themselves having to live with the consequences? It also says something to me about the importance of narrative, or story – the stories we tell ourselves. And what about uncertainty? And unintended consequences? Because of course we can’t always predict the outcomes of our choices, or the likelihood of ‘success’ (however that is defined). And never forget the old cliché about ‘for want of a nail…’, or the more modern version, ‘the butterfly effect’ – what did I say a few weeks ago about banal events that turn out to be surprisingly significant, and momentous events that turn out to be surprisingly banal?

Well, this post started out feeling quite trivial, maybe even flippant, but in the writing it has triggered something in my thoughts, both about how my mind works – how I can never settle on a conclusion – and how the world works generally.

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Going Through the Motions

Going Through the Motions

Get up and do what you always do,
even though your head is full
of all the times it hasn’t worked before;
of all the reasons why it doesn’t work;
of all the many ways it might go wrong;
of all the problems you can’t imagine
until they happen.

You want to run away and hide,
but you’ve tried that before,
and it never worked
so why should it now?

This is life,
this is how it works.
Stumble on,
from one day to the next
and maybe you’ll
get away with it
for one more day.

Linda Rushby 18 August 2020

There was a post on the FB dyspraxia group asking how many members write, and what we write. I started thinking about poems I’ve written down the years which relate to my dyspraxia (even when I didn’t know that’s what it was). They tend to be the ones I don’t share much, because I don’t expect people I know to understand them or like the fact that I’ve written them about myself. The two I first thought of were ‘Cahos’, from 2005 (oh, look at that typo again – I may make that the actual title of the poem from now on) and ‘The Awkward One’ (2017, I think).

I saw the post at bedtime, and started going through my Google drive from my phone looking for the two I’ve mentioned and to see how many more I could find (a very bad idea when I was supposed to be going to sleep). And then when I got up and was doing my morning routine, I came up with the one above.

I could probably fill a whole book, but I doubt it would be very popular. From one point of view, these poems are seething with self-pity, self-loathing and shame – which is why I often keep them to myself. On the other hand, they are also searingly honest, full of pain, sadness, regret, frustration and barely suppressed anger. Both of those descriptions sum up my underlying emotional landscape a lot of the time.

The anger in particular WAS COMING OUT A LOT IN MY THERAPY SESSIONS towards the end of last year (oops, must’ve hit the caps lock without noticing, but that also seems quite appropriate!) I suppose my current task is to learn how to deal with it without turning it onto myself – incredibly hard and stressful, but I am trying.

One way of doing that is to have routines and stick to them even when I really don’t feel like it. Yesterday I skipped my weekly yoga-in-the-park session because I convinced myself it would rain – but then it didn’t. And I felt bad for making that an excuse for my lack of commitment. So I’m trying to deal with that.

I heard a podcast of the TED Radio Show on BBC R4Extra yesterday, about choice and making decisions. I need to listen to it again, then maybe I’ll have something to say about it.

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Tangled

I did finish the book yesterday (the one I was reading, not writing) and yes, there were some surprises in the last 10%, a couple in fact, when it seemed all was lost and then it turned around and things weren’t so bad, and then it turned around again… and I did some research on the author and found that my intuition about them not being English was completely wrong, they’re older than I thought, and they’ve worked in script-writing, which fits with the crisis-point-here style of plotting. And the sequel had a good write up, so I may try that. At some point. Not now.

Looking for something else on the Kindle, I bought three other books (that’s the way it goes, my virtual shelves are groaning with unread books just as my physical shelves are, three new ones bought with every one read) and found one that I have no recollection of having bought, by an author I’ve never even heard of, but I obviously thought it sounded good enough to try. I think it might have been on a special offer, because these days I usually download the sample before I buy, and I can’t remember reading that. I may start this one next, though its estimated reading time is over 11 hours, which means it will probably take me months.

I finished the book, caught up on the weather blanket (which I’d fallen behind on because I needed to finish a baby blanket for a friend of my daughter), and finally finished untangling the yarn for a sleeveless cardigan which was also abandoned when I started on the baby blanket. And I’ve bought more yarn. Which rather mirrors the situation with the books and Kindle books.

Today is a special day, because it’s the 17th of the month, which is the day when I start the next row of the blanket, do the next bit of the border, and add the next colour to the border. This is the seventh colour, and they’re already starting to get tangled. By the end of last year they were in a terrible mess and it took ages to sort out. I can’t find a satisfactory way of avoiding it – except I could leave the border and do all of it at the end, but I don’t want to do that. I have some plastic bobbins which are supposed to snap shut and stop the yarn coming off, but they won’t take a whole skein and I haven’t got many of the largest ones (they come in three different sizes). My daughter bought them for me when she used to work in a crafting shop, I’ve tried looking for them online and have found them but only in the two smaller sizes. I can try cutting the yarn so it just fits, but that will mean joining new yarn in more often.

Well, these are the exciting things that take up my time and metal energy. Happy Monday to all.