Month: July 2020

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Surprise Visitor

I had a lovely surprise yesterday afternoon. I was sitting in the garden when there was a knock on the door, which surprised me a little, because although I was expecting my daughter and the grandkids, it was a bit early considering she’d messaged me not long before to say they were in McDonald’s at Petersfield services – and also I’d left the door unlocked, and usually the kids just barge in when they get here. I was even more surprised when I opened the door and saw her brother waiting to be let in. I knew they were trying to meet up here while she was staying (it’s his birthday today), but apparently there was an email and two texts which I’d managed not to see, saying that he was coming, but that his wife was staying home with the two dogs. I must be getting even scattier than I thought I was.

Anyway it was lovely to have the four of them here, it was almost nicer in a way that it was just us without their other halves, (although I get on well with both my daughter-in-law and prospective son-in-law). We sat in the garden drinking prosecco and tea (Simon was driving) while Simon and Flick (whose birthday is next week) opened their presents from me. Then my wonderful offspring managed between them to fix (for the time being, at least) the shower room light switch, the speakers on my kitchen music centre and the strimmer.

There’s another family birthday coming up next week: my little cat will be fifteen on the 6th August. She’s still not eating – it’s been over a month now, and I am preparing myself for the worst.

I may or may not be writing in the mornings while Laura and the children are here. Depends on when everybody gets up. Yesterday I didn’t have time because I’d had a rough night then slept in till 8 and was in a rush to get to a writers’ group meeting for 10.

I feel I should have more to say. Life gets in the way of thought and writing.

I’ve downloaded a sample of a book that was recommended to me on Amazon. It’s very spooky the way it does that, because it is about a writer who is trying to write a biography of DH Lawrence, and a novel, and is a stream-of-consciousness rant about how he miserably fails to write either (but writes this book instead). The opening section got me hooked, though I can see how it could also be massively irritating to a lot of people. Like this blog, it rambles on and on without ever getting anywhere, although he is obviously doing that deliberately and skilfully, whereas in my case it’s just about incompetence and lack of imagination and talent.  

For a brief moment, it made me determined to stop fart-arsing around (excuse the expression) and actually do something with my writing. A brief moment, until reality set in again.

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Imminent Cahos (accidental typo, but I left it because it seesm appropriate – and there I go again!)

I mentioned that I’ve joined a Facebook group for dyspraxic adults. Yesterday I got involved in a hilarious thread about having to brush your teeth before you get dressed so you don’t get toothpaste down your top. There were 34 likes, loves and laughs (so far) to the original post, and pages of comments. Honestly (I have to keep saying this) I always assumed it was just me. A couple of people said: doesn’t everyone do this? But I know for sure, because the person I’ve lived with longest (my ex) somehow managed to brush his teeth with his mouth closed – I tried it a couple of times, but couldn’t master it. I used to assume it was because I habitually breathe through my mouth, due to all the rhinitis allergies I’ve had down the years (I was always that child with the permanently runny nose).

Someone asked: ‘Does your dyspraxia affect your daily life?’ to which the answer can only be: ‘Yes, massively!’ The most obvious effect is that my main source of exercise is wandering from room to room and up and down stairs because, as my Dad would say: ’you don’t let your head save your legs!’ (as if it was that easy – presumably it was, for him). I know many people see the constant back-and-forth of trying to find things and remember what you’re supposed to be doing and why you’re there as a huge joke, but it can be exhausting and beyond frustrating – after sixty-odd years, the humour has worn mighty thin. More than one person has dropped hints about early onset dementia to which I can only say: extremely early, considering I’ve been like it forever, but at least if it does come I’ll be well-prepared.

The short term memory thing, though very significant is only part of it, of course. Time- and spatial-organisation and management is another, and planning and sequencing activities down to minute detail is related to that. I’ve often felt (before I ever heard of dyspraxia) that I have problems managing boundaries – temporal, spatial, interpersonal, probably loads of other categories my left brain hasn’t yet thought of. It’s most obvious with time, I think – when I start doing something, it takes as long as it takes – it’s why I can’t handle deadlines, or keep appointments – both of which are sources of friction with the external world and other people – and hence sources of shame and self-recrimination, leading to stress and further inability to cope.

But by comparison with many of the younger people in the group I’m so fortunate – I possess the two great blessings of financial security and self sufficiency. Many of the posts are concerned with finding and keeping work, getting help, negotiating relationships and living with other people. One young woman said in a post yesterday: ‘How can I explain … that we don’t KNOW how we adapt our lives because it’s just normal to us?’

We never lose that sense of imminent chaos. But we adapt.

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More Musings

Another morning, another empty white screen.

Still reading that book. It’s moved on from left brain thinking to ways of developing the right brain: yoga, tai chi, meditation etc. The irony is that my PhD thesis was all about managing a world where causes are reductive and impacts are holistic. Trying to find left brain categories for right brain phenomena when language itself is suspect because it immediately binds thought into its own limitations. I used to get so excited about all that stuff, until I realised that this is in itself the problem, that the two can never be reconciled, and that’s why the world is in such a mess, and probably why my head is in such a mess too. I didn’t use the language of left-and-right-brains twenty five years ago, but the ideas are directly comparable.

How can I express myself more clearly? Reading back that last paragraph, I thought: it’s about control. We try to understand causes and control them, but the problems with this are legion: how do we identify the fundamental causes? How do we find ways of controlling them? How do we implement the controls and sanctions? How long does it take before we come up against the unintended consequences of those controls and sanctions? And what has happened in the meantime to the overall impacts we were trying to control in the first place? I could go on, but I’ve probably confused you more than enough already (if there is a ‘you’ still reading this).

And how, if at all, does this relate to my dyspraxia? The author of that book would probably say that my right brain is currently working out something that my left brain is preventing me from recognising.

Yesterday was Skype-therapy day, I read out to the therapist the list of ‘wisdom’ bullet points that I posted earlier in the week, and I thought I was being quite tongue-in-cheek about it, but part way down the list I started to get tearful. Because all those contradictions and over-simplifications are what makes up who I am, and can’t be wished away by well-intended platitudes, or by trying to make me laugh at myself when all I want to do is cry. Maybe, in the context of what I was saying, they’re a set of left-brain ‘solutions’ to the holistic right-brain question of who I am and how I get by in this world without shattering into a million fragments.

I’m not saying dyspraxia explains all of that. Of course, it’s a left-brain category and hence by its nature draws arbitrary lines in the sand – this side and that side, inside and outside. But the more I look into it, the more I unravel the strands of how I became this self-contradictory person, the more I can see how well it fits.

Yesterday I joined a Facebook group for dyspraxic adults. I have a sense of ‘coming out’ and being – not exactly proud (I don’t do ‘pride’) but maybe ‘honest’.   

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Musings

Memory plays funny tricks. I’ve been transferring some of my old cassettes onto the PC, via a USB cassette player, bought for me by ex-hubby as a Christmas present, but which has spent most of the last decade stored away in its box. I haven’t been doing it the last few days – since the weekend in fact – because I realised the rooms on either side of my study were probably used as bedrooms and I didn’t want to disturb my neighbours too early in the morning.

But when I sat down this morning I had Joe Jackson’s ‘Breaking Us In Two’ in my head and thought: I don’t want to copy anything this morning, just do what I normally do, which is to shuffle the list and let Windows media player go randomly through my music. But when I opened it, the song which started up was ‘Breaking Us In Two’, so presumably it was the last track played and had stuck at the back of my mind from four or five days ago, or whenever the last time was that I sat here with music playing.

I started writing yesterday but everything I was thinking was so dark that I didn’t really want to go on. Feeling much the same again today. I think I am coming towards the time when this all seems so overwhelmingly futile that I give up altogether. ‘If you can’t think of something nice to say, don’t say anything’. It’s been quite a good run: four months, roughly 120 days (barring those I missed), 60k words.

‘I’m reading a book which puts forward evidence from research in neuroscience to show that what we call the ‘self’ is not single and fixed for any individual but rather plural and malleable, and hence, in a sense, illusory. I don’t find this contentious, in fact I’m rather surprised that anybody would. It’s rather like saying ‘there’s no such thing as society’ – there may be no specific institution or body which bears that name, but the influence of the web of interactions, rules, structures, relationships etc on the actions of people and organisations leads to impacts in the physical world.’

That’s how I started yesterday, which I suppose isn’t too grim, but the rest of what I was thinking was. I read some more of the book after that, and found that the author was saying that the ‘self’ is created by contrast with everything which is outside the self. Which surprised me, because there I was thinking the other way round, that it is embedded in a network of influences (nature and nurture) and is the product of those. I’m not a psychologist, and maybe I’m not understanding the terms properly – what’s the difference between the ‘self’ and the ‘personality’, for example?

He went on to say that the left brain operates by looking for patterns and telling stories. Which sounds very like me.

Maybe I will keep writing – at least, when I’ve read some more.

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No Pressure…

Wisdom of a lifetime, accumulated from what I’ve read, been told and learned from experience:

  • I think too much;
  • I never think;
  • I feel too much;
  • I am selfish and don’t have enough consideration for other people;
  • I care too much about other people’s feelings and what they think about me;
  • My expectations of life are ‘through the roof’;
  • I don’t expect enough from life – I should dream more, decide what I want and go for it;
  • I need to get out more and meet people;
  • I am happier on my own and should keep away from other people because being with them makes me stressed and frustrated;
  • I need an occupation that will give purpose to my life and focus my energies;
  • I need to do less and stop running myself ragged all the time;
  • I need to try harder;
  • I shouldn’t have to try at all;
  • I need to write every day – doesn’t matter what about;
  • I need to be focussed in my writing and finish what I’ve started;
  • I need to tidy up after myself, because how can I focus and be comfortable when I’m surrounded by chaos?
  • I need to stop beating myself up about the chaos and learn to be happy as I am;
  • I need to organise myself, make lists, set goals and get some structure into my life;
  • I need to take each day as it comes and be spontaneous;
  • I need to sort myself out;
  • I need to be less self-centred;
  • I need to be more self-disciplined, to stop floundering about and getting nowhere;
  • I need to stop being so hard on myself.
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Every Day is New Again

Today is different. Every day is. Feeling quite good, which is noteworthy because so unusual. Wish I could tell you why, what makes today different from the norm, but I have no idea. I didn’t get any more sleep than usual – fell asleep around 12.20 (according to the app) and awake 4.30, so if anything slightly less. Don’t have to go anywhere today (except possibly yoga this evening if the ground isn’t too wet), so nothing to feel apprehensive about. I had a go at making a birthday card for my granddaughter yesterday, which has been lurking at the back of my mind for a while as something that needed doing – that probably helps.

Remembering the REM song, ‘Every Day is Yours to Win’:

‘Every day is new again
every day is yours to win,
that’s how heroes are made…’

I don’t anticipate being a hero today, or any time soon, but inclined to look for the good bits this morning – maybe I can have breakfast in the garden?

Still no idea what I’m going to write about. Yesterday I wrote about dyspraxia, which I’ve tentatively started on a couple of times before. Yesterday I went into more detail. It’s hard to explain because I’m still trying to get my head around it myself – and quite honestly, it doesn’t seem very well understood scientifically as yet, compared to dyslexia and dyscalculia, which have been studied for much longer. And (naturally), I’m not very good at explaining it to other people. When I try to talk about it, mostly they seem to think it’s snowflakey, self-justificatory nonsense and just an excuse for continuing to be lazy, scatty, disorganised and inconsiderate of others – or alternatively, that I’m being unnecessarily ‘hard’ on myself, and I’m really not any of those things, and I should stop ‘worrying’ about it. This is where writing comes in, because it’s so much easier to explain things when I have time to think and compose what I want to say without being face to face with somebody interrupting and asking questions and throwing me off-track (which usually results in me feeling tongue-tied, stupid and frustrated).

Now I’m staring at the screen wondering if I want to go on, and if so how, and looking again at that Paul Nash postcard, the one of the bird looking into a mirror on a cliff top. What you can’t see from my photo (because of the poor light in here) is that in the mirror there is the reflection of another bird, this one flying away in the distance.

I like art which shows the impossible, or what appears to be impossible, or at least unexpected. I’m not a fan of Dali (possibly coloured by what I know of his politics), but I quite like surrealism in general. I like pictures that get you thinking and seeing things in other ways. The literary equivalent is magical realism – I like that too, set in the ‘real world’ but with impossible bits.

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Coping (Barely)

Yesterday evening I felt overwhelmed by the futility of everything, and started weeping uncontrollably – which is unusual, because that’s how I normally feel in the morning. By the evening, it’s usually much better.

On Thursday, the therapist asked whether the dyspraxia assessment I had two years ago had come up with any advice or strategies which might make life easier. I couldn’t remember. I said I would look at the report, but when I started looking for it I couldn’t find it – because although I’d saved it in a folder in my documents, I’d done it under the name of the consultancy that did it, and I couldn’t remember what that was.

I went into my accounts for 2018, and found the name of the consultancy with the payment. I then searched on that, but Microsoft Search showed me links on the web, not in my files. So I tried again by searching for it in my emails (miraculously, although it could have been under any of four email addresses I use, it was in the first one I tried). I found the pdf attachment of the report, but it was password protected, I had to read another email to get the password, then I kept getting it wrong, but finally got into it. (It was after all this that I found that there was actually a folder under the consultancy name in my documents folder, plus a word document with the password in, but now I know it’s all there I will change the folder title to include ‘dyspraxia’ to make it easier to find next time).

The answer to the therapist’s question about advice was: ‘If Linda requires support whilst working as a self-employed writer and publisher she could consider workplace skills training with a specialist dyspraxia/dyslexia tutor’ but nothing about coping with daily life. Also, if I ever take any more exams, I should be entitled to extra time for completing them.

Under ‘Implications for work and study’, the consultant says: ‘Because of Linda’s difficulty processing information, she is likely to have problems: assimilating information when reading (thereby needing additional time to do so); formulating her thoughts, fluently and quickly…; with handwritten tasks (eg copying information); with memory (eg remembering instructions, sequencing, retrieving information and planning ahead); multi-tasking (eg dealing with multiple pieces of information/documentation)… with personal organisation; with co-ordination; and working within time constraints… she will require more time to learn and undertake complex tasks.’ (But no mention of cat food in the coffee pot, or where I put my glasses thirty seconds ago.)

Well, tell me something I don’t know already – but at least it’s reassuring to know there’s a reason why I’m so chaotic, even if there’s nothing I can do about it. Except, of course, to be a ‘good person’ – to become self-disciplined despite all my instincts and inclinations, organise my life and myself and keep on top of everything all the time – but somehow without being self-critical and beating myself up.

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No Answers

What am I doing? If I censor myself to write only what I think people want to read, can I write at all?

Round and round in the same old circles. I sit and stare at the colourful icons across the bottom of the screen.

I feel as though I could go back to sleep. Maybe I could – it’s nine o’clock now, so I’ve been awake for about four hours. But if I went and laid my head down on the pillow – which I can’t anyway, because my hair’s wet – no, I won’t, I’d just spend another frustrating hour or so lying on the bed wanting to sleep and then feel like I’d wasted the morning.

Earlier, when I was doing my yoga/tai chi/sitting practice, I had a line from a song stuck in my head: ‘and I, I have no answers…’ I had no idea where it was from, or who, or how it went on from there (except that I knew there was some awkward phrasing in the next line). So I’ve just googled it – which didn’t help much, because do you know how many songs include the phrase: ‘no answers’? My search threw up a link to a web page listing songs with that phrase in the lyrics – 12,414 of them. But while scrolling through them, I had a flash of memory which told me it was called ‘A Thousand Roads’ and it’s by David Crosby. Then I remembered when I discovered it, which was about ten years ago, because it was when I was living in my flat in Bedford – and I remembered blogging about it then. I still couldn’t remember that awkward next line, so went back to Google, and it’s: ‘I’ve got no patented path to set you free’ – it was the ‘patented path’ bit that didn’t sound right when sung – iffy meter, stress in the wrong place.

Well, that has taken up most of today’s quota, I’ve managed to skate away from the angst again. Who can I share my angst with? No one. No one wants to deal with my angst, ever (unless I pay them). I’m stuck with it, first thing in the morning, every morning – well, most mornings.

I want to play that David Crosby song – on Youtube, because I haven’t got it anywhere. But yesterday I was playing music while I wrote, because all week I’ve been digitising my old cassettes and transferring them to the PC – and while I’m doing that I have the volume turned on so I know when it finishes, and also because I want to hear these songs I haven’t heard for years. But then someone in the equivalent room next door started playing music, and it occurred to me that they could probably hear mine too, and not everybody is up and about at this time in the morning, especially at the weekend, and I don’t want to piss off my neighbours.

Once again, I’ve managed to fill 500 words with non-contentious rubbish.

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Two Haikus Inspired By Birds

Listen to the gulls.
Are they laughing or mourning?
Who are we to ask?

Small bird on the roof,
pecking amongst the red tiles.
How simple your life is.

Linda Rushby 17 July 2020
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Control

I finished yesterday’s post with a rhetorical question – which I intended to continue today – I remember that, but I can’t remember what it was. Excuse me while I have a quick check…

…

‘Why not just let it all go, accept that I am who I am, not cut out to be A Writer. After all, I’ve given up on so many ideas about how my life should have been (happy relationship, career, financial independence etc), why do I keep picking away at this one?’

Ah right, yes, that is what I was going to write about. It’s been in my head quite a lot and I thought I had an answer…

The main one, I think, is that that is the only one of the four which is still within my control. I could argue over whether any of them are realistically feasible, but I’m not going there today, beyond saying that all of them rely on huge amounts of luck, but also, more significantly, on other people – potential lovers, potential employers, potential clients. One thing I have learnt to accept in life is that any situation where I have to persuade or convince anyone else is stressful, unlikely to end well for me and hence best avoided.

But I can write. I can even ‘publish’ – even if it’s only posting these daily 500 word mini-essays about this, that and nothing in particular, it’s still publication in the sense of putting it into a public space where anyone with access to the internet can potentially read it. I can even go further, I can gather my words together and dump them into e-books, or have them printed into paperbacks which I can put on my shelves with my name on the spines. The technologies and processes are all at my fingertips.

A couple of years ago I met a life coach who suggested I visualise writing a best-seller, then plan the steps to get there. I don’t really know why I reacted the way I did, but I got very angry – she was trying to help me, but setting extremely unrealistic aspirations just seems frustrating and depressing, not motivating, as far as I’m concerned. I suppose it’s the tired old chestnut about the glass of water again – the significance of the gap seems overwhelming compared to that of the contents.

What I really long for is that buzz of excitement from creating a world in my head, finding out what’s going to happen next, bringing it all together. There really is nothing in the world quite like it – except the buzz of intellectual discovery, the moment when the ideas interconnect and click together and suddenly some small part of the world makes sense in a way it didn’t before – I’ve felt that too, but not for many years.

So, all I can do is to keep going, doing what I can, not being distracted by what I can’t. Letting go of expectations, and letting the words take control.